Tonsil cancer. A positive day!

Good luck on your journey. There is still a bump or 2 in the road to go try and stay positive you wishing you all the best x

Hi Mark, 

Further to an appointment today, he has to have a Pegg/ feeding tube fitted on the 24th, is this something you had? In the research on this group I've not yet come across it. Just wondered if you had any experience or knowledge?

He had lost some weight due to the tonsillectomy and infection but has gained again since, they say his BMI is fantastic so just curious really.

Thanks for all ur feedback,hope your well. 

All the best Duskie 

Hi Duskie. Lots if people have PEGs which are feeding tubes which go into the stomach through the abdominal wall. It depends on the hospital trust really. PEGs are proactive and placed before treatment starts. My trust’s policy was to use nasogastric tubes if needed which is what I had. 

Thanks Dani,

So as I understand as wasn't at his meeting today, it's just a precaution? as we've been warned week 3 into chemo/radio he will struggle again to swallow and will no doubt loose weight. Meeting with dietitian next week and speak and speach therapist. 

H like  Dani says it all depends on trust policy mine like  Dani s don’t routinely fit  pegs but I had to agree to  agree to n g  tube if needed . By week 3 I needed it  j had it in fir 6 weeks. As treatment progressed I had all my medication in via tube all my water snd feed. Just look at it as an insurance policy you hope you don’t need it but it’s there if he does. Hope all ok snd things have become clearer. As time goes by everything falls into place. 
The peg will cause some discomfort for 24:48! hours when fitted.  I understand am sure the others will pop on who have had one fitted. 
Hazel 

One tip when he gets the swallow exercises make sure he does them they only take minutes but are beneficial in the long term. 
Hazel 

Hazel, thanks for both feedbacks! Definitely both feeling more positive now everything's being put into place, moving fastly forward with his treatment plan. Wasn't too sure if the Peg was being fitted for us to use at home if needed or just if he has to go in x

Duskie x

Unknown said:

it's just a precaution?

Not really. Most people are unable to swallow by the time they’ve finished treatment so it’s part of the whole treatment in a way 

Some do manage but not many. 

Thanks, makes sense!

Ss Danibsats it’s rare that any of us get by without Intervention the treatment effects us all differently but eating and drinking difficulties are common. It’s there to be used so my best advise is use it when he needs it. 
No prizes for toughening it out 

Hazel