HI All
I am just starting my journey, and one week into my Radio and Chemotherapy. I know it is early days but I am starting to get a taste in my mouth and seem to be losing my taste? Everything is starting to smell similar? Is this common?
THANK YOU
This is pretty much universal Cal. I had a metallic taste and then totally lost my taste buds at around 3 weeks in. Christmas dinner tasted totally of cardboard and eating became something of a chore, but luckily it all came back about a month after treatment ended, although it can take longer. It depends where they’re targeting I guess. Good look with your journey. Loads of us have been through it, or are going through it, and are here to help.
Hi Cal I am just over 3 months out of treatment and cannot taste certain foods. I had half a bacon sandwich yesterday and couldn't really taste the bacon but the sauce. You just have to resign yourself to the fact that food is going to taste rubbish for a while. Saying that we are all different . All The Best Regards Min
Ditto here too. My taste went completely haywire. Most things tasted absolutely vile and I felt I was onto a winner if something tasted of cardboard!
Most people begin to recover their taste within a few weeks of completing treatment. Mine was very slow - it took about 4 months before I could taste a carrot.
A change of attitude is required where food is concerned I'm afraid. It's fuel and it keeps you going rather than being something enjoyable.
Good luck with your continued treatment.
Linda x
Hi Cal your taste buds go out the window big time. I had the joy of a burning smell for ages. As Linda said you just have to think of food as fuel and get it into yourself to live regardless . Sometimes its better to avoid your favourite foods as they taste vile sometimes , like potatoes and yogurt which were horrible for me. Weetabix with fruits and milk microwaved is a meal. Also milk shakes are great , ice cream, bananas and berries and anything else you fancy, Use oat milk or loads of others if cows milk is to sticky on your throat . Just take one day at a time and you will get there like the rest of us . All the Best Regards Min
Hi Cal. Agree with the others. Food is fuel for now. So get the calories down any old way. Lots of cream butter cheese soups and ice cream as well as your prescribed complete nutrition drinks. My taste didn’t disappear it just went completely awry. I couldn’t tell you what I was eating for a while and some of it had no taste at all. It came back slowly but it’s still not in HD and I have developed a sweet tooth which I never had before
Keep going.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
yes I agree with everyone I never lost taste but had the metal mouth snd burning smell. It’s a case of eat to live not live to eat for a while. Get calories in any way you can. If you’ve a peg feeding tube use it when you iu need to us things get so bad and you can’t eat I had a n g tube fiiited end of week 3 it was a lifesaver. Some do manage without one.
good luck on the start of your journey
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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