Treatment finished

Hi Ronnie  well done on completing treatment.
yes the first 2- 6 week of recovery can be pretty bad. I was fine until week 4 of treatment then hit the brick wall. Hunkercdown listen to your body put all your medication through your peg make sure you are getting enough calories snd hydration. Try to sip water if you can if you can’t don’t stress about it I was 4 weeks at least without swallowing I didn’t loose my ability to swallow either . Find some box sets ti watch don’t do anything strenuous and sleep when you need to. 
love the white board we used post it notes ! 
Hazel x just remember by next Easter you’ll look back at it all as a blip and hopefully get double Easter eggs. 

Well done Ronnie on finishing treatment , Take it one day at a time . All the Best Regards Min 

Well done Ronnie. For me the worst time was two to four weeks after I’d finished but even then it was bearable. Just remember to keep taking the meds to stay ahead of the pain, keep your neck moisturised and keep on the laxatives! I’m 3 months finished now and can verify that it really does get better. Forwards and  backwards at times, but in a few weeks you’ll be surprised how much better you’re feeling. 

Hi MarkEL how are you getting on eating as I am on the little drinks still as food makes me want to gag and water is still bad , All the Best Regards Min 

Eating is not too bad how thanks Min. It takes me a long while to eat due to the lack of saliva and my throat still feels a little restricted, so I have to double swallow sometimes, but I’m assuming this is my new normal. You’re a way behind me so don’t worry if it’s still hard. I finished my last Fortisip a couple of weeks ago so that was something of a Red Letter Day! Keep at it mate. It does get better. Slowly!

Hi MarkEL How are the taste buds going ?. I took my nose tube out nearly 2 weeks ago so has been a bit of a struggle eating enough not to feel ill and drinking enough water. Havnt starting walking yet as feel like fainting sometimes when I stand up . Will have a word next week and hopefully get sorted . All the Best Regards Min  

Taste has pretty much come back. I too sometimes feel a little dizzy when I stand up suddenly. At your stage I was surviving on Ready Brek made with Fortisip, soup and custard with double cream. Hope you get sorted. Rgds M

Hi min. Blood pressure can do daft things after RT do just take it easy 

Hi MarkEL that is excellent news about taste. I will struggle on with the foods. All the Best Regards Min 

Hi Dani I have really been struggling with feeling physically sick in the morning which really puts me off eating and drinking which is not good. I spoke to the nurse last week and she mentioned it could be my blood pressure and to get the GP or whoever to look at that so hopefully will get sorted next week. All the Best Regards Min