Recently diagnosed

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Hi all, I am recently diagnosed with base of tongue cancer which is also in LH lymph node

 Starting radiotherapy 5th Oct with two bouts of chemo. I have had my mask made and three wisdom teeth pulled.

On Thurs I am attended a pre-treatment clinic and get the chance to see a dietician and speech and language therapist.

What questions should I be asking? So much info this last week but some areas lacking i feel. Wasn't given enough info/notice re: feeding tube so didn't opt for PEG am now regretting this, thoughts anyone?

Also should I post this in 'Treatment' instead of this thread?

Thanks in advance, all new to me at the mo

  • Hi and welcome.

    There is a really useful thread HERE

    Also should I post this in 'Treatment' instead of this thread?

    It's fine here

    re: feeding tube so didn't opt for PEG am now regretting this, thoughts anyone?

    My trust didn't offer this at all but I did have a nasogastric tube at the end of week three/beginning of week four the I couldn't swallow anything. Make sure this is an option going forward as I hate to think how awful placing a PEG would be once you are having trouble eating.

    I have a bog HERE which might be useful too

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Flowerchild, welcome to the group, it's good you have found us. As for asking questions when you meet your, it's good to take a notebook to write things down, it can become an overload of information and you forget a lot, even better if you can take someone with you, two sets of ears. As far as the feeding tube goes, I would always advise people to have one if offered, you could tell them on Thursday that you have changed your mind, it's probably not too late to get one fitted. Stick with us, we're all here to help if we can, any questions just ask away.

    Ray.

  • Hi and thanks for the info, I will definitely be asking if they can fit a PEG next week now. 

    Mandy

  • Hi, I am hoping my husband can come with me as he needs to hear some of this stuff too, he has made most of my appoints so dar and work have been good with him, and yes two pairs of ears will help. 

    Mandy

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