Hi I’m new here,
I have base tongue cancer. Had the first round of chemo Monday 24/8/26 and I’m a week through the first of six weeks radiation which will also follow with second round of chemo on 14/9/26.
Any good ideas to reduce low hearing tinitus (feel like I’m in a washing machine) and indigestion. Also still feeling a bit sick still, but guess this is all the ‘normal’ process.
Sending support to others struggling at this time x
Hi JCS
Ask your team for a better antisickness med. We are always given the cheapest options and those don’t always work.
Were you not warned about reporting tinnitus? Please tell your RT team at your next session. Cusplatin can cause permanent changes so your chemo might be changed to the less otoxic Carboplatin
Hi Dani
Sorry to piggyback.
Do you have any significant secondary symptoms seven years after treatment?
Sorry to piggyback.
Do you have any significant secondary symptoms seven years after treatment?
Heavens, don't apologise.
Dry mouth in the day is manageable and I can eat largely anything I ever did. It does need extra care at night in so far as I am now using Oralieve spray if I wake which I never did till recently. Saliva drops off with age anyway and I am 75 so it is likely a combination of both.
Duraphat to protect against caries when you lose the protection of normal saliva is a lifelong medication
Saliva make up is altered after radiation and can interfere with the acid balance in the stomach causing reflux so I take Lansoprazole. Most of us are put on it after treatment anyway.
I keep an eye on thyroid hormone levels as radiation can damage the gland even years after but all is fine so far.
The most significant sequel is arteriosclerosis. RT changes the lining of the arteries in your neck and I am always urging people to at least get a doppler scan (GPs are reluctant so you often have to pay for it yourself)
I by passed the doppler and went straight to a CTA. My carotids are OK with only the amount of plaque which somebody my age might expect if they have a history of smoking (gave up 20 yers ago) My left vertebral artery (on the side of treatment) is seriously stenosed but thankfully we have a collateral circulation naturally so I should be OK. I am therefore on a Statin, take a blood pressure pill and Clopidogrel (though my vascular chap reckons the blood thinner is probably not necessary
It all sounds a lot but it isn't. I still do my swallow and jaw exercises
Sorry if all this is information overload
Bless you.
It does sound a lot!
Only veterans understand the true meaning of remission..
I still have 3 out of 10 pain when I talk (6 years later) but I'm just resigned to it now.
Scans have been negative for 6 years.
Just Little Mermaid syndrome I guess..
Kindest
Russell
Bless you back, Russell
Keep on going on...........
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