Effect post chemo and radio week 1

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Hi I’m new here,

I have base tongue cancer. Had the first round of chemo Monday 24/8/26 and I’m a week through the first of six weeks radiation which will also follow with second round of chemo on 14/9/26.


Any good ideas to reduce low hearing tinitus (feel like I’m in a washing machine) and indigestion. Also still feeling a bit sick still, but guess this is all the ‘normal’ process.

Sending support to others struggling at this time x

  • Hi  

    Ask your team for a better antisickness med. We are always given the cheapest options and those don’t always work. 
    Were you not warned about reporting tinnitus? Please tell your RT team at your next session. Cusplatin can cause permanent changes so your chemo might be changed to the less otoxic Carboplatin 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you, I will speak to the team, many thanks for posting! 

  • Good luck with your treatment 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani

    Sorry to piggyback.

    Do you have any significant secondary symptoms seven years after treatment?

    Pray

  • Sorry to piggyback.

    Do you have any significant secondary symptoms seven years after treatment?

    Heavens, don't apologise.

    Dry mouth in the day is manageable and I can eat largely anything I ever did. It does need extra care at night in so far as I am now using Oralieve spray if I wake which I never did till recently. Saliva drops off with age anyway and I am 75 so it is likely a combination of both.

    Duraphat to protect against caries when you lose the protection of normal saliva is a lifelong medication

    Saliva make up is altered after radiation and can interfere with the acid balance in the stomach causing reflux so I take Lansoprazole. Most of us are put on it after treatment anyway.

    I keep an eye on thyroid hormone levels as radiation can damage the gland even years after but all is fine so far.

    The most significant sequel is arteriosclerosis. RT changes the lining of the arteries in your neck and I am always urging people to at least get a doppler scan (GPs are reluctant so you often have to pay for it yourself)

    I by passed the doppler and went straight to a CTA. My carotids are OK with only the amount of plaque which somebody my age might expect if they have a history of smoking (gave up 20 yers ago) My left vertebral artery (on the side of treatment) is seriously stenosed but thankfully we have a collateral circulation naturally so I should be OK. I am therefore on a Statin, take a blood pressure pill and Clopidogrel (though my vascular chap reckons the blood thinner is probably not necessary

    It all sounds a lot but it isn't. I still do my swallow and jaw exercises 

    Sorry if all this is information overload

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Bless you.

    It does sound a lot!

    Only veterans understand the true meaning of remission..

    I still have 3 out of 10 pain when I talk (6 years later) but I'm just resigned to it now.

    Scans have been negative for 6 years.

    Just Little Mermaid syndrome I guess..

    Kindest

    Russell 

  • Bless you back, Russell

    Keep on going on...........

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge