Hi all
Wanted to join this forum and say hi.
Recently diagnosed with cancer in left tonsil and some lymph nodes on left hand side.
Aged 49, supportive husband and family for which I am grateful. Work is being understanding too. No kids but have a dog and two cats.
Had tonsil biopsy a few weeks ago. Treatment is going to be 6 weeks of RT with weekly chemo (Cisplatin).
Unfortunately, it is going to be bilateral RT as they have said it is midline but my oncologist has said they will give lower dose to the r/hand side.
Awaiting my dental assessment (next Monday) and mask fitting (hopefully soon after). Quite excited about the mask as I am a bit of a sci-fi fan which is helping me stay upbeat during this waiting time.
In preparation, I have bought myself a humidifier, baby toothbrush, will be buyng a nebuliser (my hospt will supply the saline), some syringes without needles, a thermometer. Keen to get PEG/RIG fitted so that I have it ready to roll. (I've also bought some Ambrosia rice pudding but I reckon that will be gone well before my treatment starts!) I would welcome any more top tips :)
Now just waiting to get this s-show on the road!
I'm planning as much as I can but am resigned to the fact that I'll probably be a bit of a mess once the RT and chemo is underway and also for those weeks/months afterwards too.
I've signed up to that OracleHNC Webinar: “Newly diagnosed. Now what?” on 8 July 2026.
I've read some of your really useful posts on here and blogs and am grateful for those that have shared their experiences. It has helped me navigate these beginning bits and made me aware of the stuff that I need to be thinking about and ready for.
Thanks very much. May the force be with you.
