Hi there, I’m new to this forum, my husband was diagnosed with NON HPV tonsil, tongue and lymph node cancer in Dec last year. It was (is?) T4 and was diagnosed quickly due to pain and bleeding. He had 2 lots of chemo (massive doses) at the beginning and the last week of treatment and underwent 6 weeks of radiotherapy.
My husband has had 3 lots of antibiotics before, during and after treatment and was hospitalised 3 weeks in to stabilise the infection and released the day treatment finished.
He is now 17 weeks into recuperation, managing to eat mushy food and drink more or less normally albeit it slowly, He has to be careful as he does get nasal regurgitation. He’s been lucky (if you can call it that … ) to retain his ability to taste food and the mucus is much more manageable than it was. He still suffers from a sore tongue, ulcers and sometimes his throat just hurts.
Is it normal to have these problems 17 weeks into recovery?
He had a PET scan last week and we’re waiting for the results, we have an oncology appointment on the 19th. The waiting is agony and we’re both exhausted and frightened.
Thanks in advance for any support given.
Debbie
How are you feeling today ? And what’s the next steps in your journey ?
xxx
Morning Debs.
Brilliant! It's like a 100 tonne weight's been lifted, isn't it?
Did you video the bell ring? I did but paused it when our blubbering commenced! I still start up every time I play it back.
Can I pinch your thread for a second to make my announcement lass?
Folks, for anyone who knows about our journey, H was given the all clear too, two days ago. Relief doesn't come into it!
Gill xx
Fab news. One life just live it us our motto.
hugs
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hello Debs and Gill - you have me in total bits ! Can’t type too much as I can’t see the screen on my phone ! Overwhelmed with emotion and so happy for you both and your partners Jon and ‘H’
Just the best !
All our love and best wishes - Nige & Ellise X
Nige

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