In Shock....

Hi DsBish 

welcome but sorry to see you here. 
I’m pretty convinced Google is not your friend so ask any questions here.. There’s a huge amount of experience and support here. 

DsBish said:

at least its the HPV kind that is easier to treat and high life expectancy . 

The treatment for tonsil SCC is the same for negative and positive disease but as you rightly point out the OS for positive disease is longer

The treatment is pants but doable. 
Im seven years clear of lingual tonsil cancer and well

BTW are you in the USA? 

HI, and welcome to the place where no one wants to be, sorry to here about your diagnosis feel free to ask any questions lots of people on here who are going through or have been through similar so plenty of tips and advice if you want it .Try not to google your symptoms because every one has a slightly different reaction to Cancer and the treatment of ,good luck .

The treatment for HPV16+ is around 90%+ successful, tough treatment, not a walk in the park but it will not last forever, all on this forum have been through the treatment either as a patient or supporting patients/loved ones...the forum is a goldmine of useful info and has a wonderful support network...keep posting...please avoid Dr Google...try to enjoy doing your favourite things...and eating your favourite meals...things may change in this area for a few months.

Hi DsBish, welcome to the group from me. Please don't feel alone, all of us in this group know what it's like to be told you have cancer, and how you feel at the moment. Be assured this type of cancer is curable and the treatment does return very high cure rates. Try to stay off Google it will only make you feel worse with information that at best is out of date. You can ask any questions on here; we are all here to help you and your hubby through this.

Ray.

Welcome at least you can now focus on the treatment plan and try not to keep googling. You are right that HPV positive is very treatable. However as a wife of a HPV negative sufferer, wanted to reassure anyone with a negative status that the outcomes are still overall very positive for that too! I’ve found this forum super helpful

Sorry to hear about your diagnosis - but don't lose hope, you will get through this as many people have. You're going to be exposed to a lot of new information over the coming days/weeks, so any questions just ask on here. Everyone is really helpful and the information is good. As everyone has said - do stay away from google. Official studies are fine if you're inclined to read them - but random sites and discussion boards are to be avoided.  I'm just coming to the end of treatment so have just been where you are.

Hi DsBish welcome from me. I was in your place almost 8 years ago next month. Happily living my life I too was 61 and was diagnosed with HPV tonsil cancer .i was also blindsided I thought I had pulled a muscle in my neck raiding my bike blissfully ignorant on an extended trip to Spain. The rabbit hole of dr Google walk away now stick with us we will all hold yiur hand. Feel free to rant cry vent in here we’ve all been there. I im typing  from Spain Ince again living a great life 8 years later. 
advise eat chocolate whike you can ut may be a while before yiu can do so again. I’m sat here eating 2 squares of my favourite dark chocolate. 

hugs Hazel xx

Omg you made me laugh and I really needed that...It's PANTS! ...of course I had to look it up....just love learning new words 2 Call this situation SHIT!

Thanks so very much 4 responding!

Thank you!

I dont know how to add to this, is it better to start a new thread?

Day 2 of my Cancer Adventure....weeeeee...Said No One Ever!..Set Up PET scan for next week and most likely see Radio oncologists week after next. So I get it we wait to see if the Nastiness has Travelled....we R not using the "M" word over here.Nope!Hoping 4 the Beat!

Im ok so far but my biggest question 4 yall rught now is: Y are they not automatically giving me surgery to remove the fckim Nasty tumored Tonsil I still have in there!

Dr gave me all thre info, like it will cause gaping wound. might preclude swallowing later, and some stuff about lymph nodes.Apon hearing thus news I who  knows absolutely Nothing about any of this wants to tell this very informed Dr of 30 years he needs to take it out NOW..PERIOD! Cuz I am of the mind No Fckn way it stays there....I mean I can actually See and Touch the Dayum Tumor.....freaked out is an Understatement. But the Dr seems a reasonable and educated man and even kind, so do I just take his word for it? I mean 30 years experience....

I know yall will have good advice and previous experiences with this PLEASE share and help me feel good about the choice I will have to make.

Also I feel like I should get a second opinion. Is that right? OuR town is so small Ill have to go hours away, I Will of course , but srsly wont even know what or who to trust if I get conflicting treatment plans......

HELP! So Overwhelmed!

I keep wanting to say SORRY to everyone...cuz I Am , but I need the help!

• Thanks so much 4 being fantastic folks and being out there ready to share and care.