I just found out 2day biopsy for tonsil cane back Squamous Carcinoma HPV 16 Positive.
I am all at once gutted and a bit relieved. Mostly Im just a goopy emo mess of crap and I can hardly breath.
I Was minding my own on Tursday awaiting what i was told was 2 be a standard Tonsil removal when the Doc casually drops the "C: bomb in pre-op before we go 2 OR. I Srsly thought he was April Fooling me. I proceeded 2 have a Massive Panic Attack, because WTF? My hubby wasnt even in pre-op w me so they went and got him and we relived the information 2gether. We wereJust Blindsided!
We are not surprised after all Doc said about my tonsil that the Biopsy came back Positive, at least its the HPV kind that is easier to treat and high life expectancy .
I have currently set up shop in the Rabbit Hole that is my Diagnosis and am distracting myself with gobs of data so I cab kinda ignord the fact that I sm completely petrified. Im sooooooo scared.
Its literally just me, 61 and my Amazing Hubers, 56. We have no family and only a few semi close friends. Im pretty sure We will need sipport. This site was 1st to pop up and It has already helped me alot. I feel less alone, and am hoping we can get the help we need and also help others here. Make some connections....Thanks
Hi DsBish
welcome but sorry to see you here.
I’m pretty convinced Google is not your friend so ask any questions here.. There’s a huge amount of experience and support here.
at least its the HPV kind that is easier to treat and high life expectancy .
The treatment for tonsil SCC is the same for negative and positive disease but as you rightly point out the OS for positive disease is longer
The treatment is pants but doable.
Im seven years clear of lingual tonsil cancer and well
BTW are you in the USA?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
