Stage 4 SCC

Carper 1 month ago

7 replies
147 subscribers
340 views

Hi everyone thought I would introduce myself as I've just joined (late to the party and apologises now for my spelling!!) I am a very positive person and have to find a joke in everything (much to the annoyance of the surgeons).

I was diagnosed on 31st January with cancer and at the time it was either lymphoma or Squamous Cell Carcinoma. On 3rd February it was confirmed as a SCC of my right cheek. I had surgery on 17th February which lasted 13.5 hours to remove the tumor.

I had a meeting with my MDT yesterday where results confirmed my SCC is stage 4 due to the aggressive nature of the tumor. A positive take is that it had not spread to my lymph nodes.

Right now I'm waiting for radiotherapy. Is there any advice anyone can offer with how to best prepare for this please?

Thank you.

Beau Chapeau 1 month ago

Hi Carper, here is a good place to start... Helpful tips for those about to start treatment.. - Macmillan Online Community

Loz (62)

Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..

Beesuit 1 month ago

Hi Carper

A welcome from me. Read Loz’s thread. It’s jolly useful. Then come back here with any questions you might have

It would be useful if you could put up a brief synopsis in your profile too.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Carper 1 month ago in reply to Beau Chapeau

Thank you Loz.

Carper 1 month ago in reply to Beesuit

Thank you Beesuit.

RadioactiveRaz 1 month ago

Hi welcome from me. Read Loz piece it’s comprehensive. Best advise keep off dr google take treatment one day at a time. I’m a wimp but I did 35 sessions.
any questions just ask. If in pain don’t brave it our painkillers are there for a reason. If you have opiates remember you’ll need laxido or movicol as you do get constipated.
Hazel x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

Carper 1 month ago in reply to RadioactiveRaz

Hi Hazel,

Thank you for your message.

I was told from day 1 by the doctor to stay clear of google which I have done as I know what it can be like! I have read the link from Loz and your right it's so comprehensive.

I'm a very positive person and it does take a lot to get me down so hopefully I can keep this going through radiotherapy and try and annoy the guys there !

Thanks again,

Simon

RadioactiveRaz 1 month ago in reply to Carper

Hi Simon I too remained positive and some days annoyed my fellow patients in the radiotherapy waiting room made a few friends there’s who 7 years later we still meet up twice a years.

Any question's just ask

Hazel.