Fatigue

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My husband doesn’t have the energy he used to have before all this started. He’s a bit over 2 months completing his chemo and radiation. He’s still not eating like he should. Taste comes and goes. Some days better than others. Is it normal to still feel fatigued?

  • yep.. I'm just over a year on and I often just run out of steam.. not as bad as it was but it still happens..

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Is it normal to still feel fatigued?

    Absolutely. 
    You can expect this to come and go for a year or so

    On top of that I had days when the fatigue absolutely slayed me out of nowhere. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

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  • Yes, completely normal. I’m 7 months out of treatment and still under dietitian for the meal replacement drinks as I’m still off food. Fatigue still catches me out too, though not as much. Been told to expect this all for around a year. 

  • Hi,I'm in the same term. 6 months recovery from radiotherapy. Taste negligible,dry mouth  and a varied range of food textures. As I have no back teeth , chewing is weird using only front teeth. Also been told it will take time to heal fully. Well over the year that seems to be expected. Fatigue is an occasional thing.  Some days I'm fresh then others I feel washed out. Plenty of siestas. I hope this is helpful. Take care.

  • Quite normal.  Even one year in I feel fatigue if I do too much, but I have discovered that my thyroid has been damaged so that adds to the fatigue until it can be stabalized.

    Best advice I was given was don't let the battery get below half charged.  Rest at that stage and it is far easier to recover than from a fully discharged state.

    As to eating,  little and often.  Experiment and expect that what works this week does not work next week.  It will get better, especially as he (and you) learn what works. 

    Peter
    See my profile for more details of my convoluted journey
  • Yes radiation fatigue is like no other. You can’t fight it listen to your body nap but also try to get him doing a little walk each day. I started by walking to nearest lamppost on our street then each day a little further. The more you try to fight the fatigue the harder it is. But combine the 2 he’ll hey there. 

    hugs 

    hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Just like the others. 
    In my head  I can do what I used to at the same speed and in the same way….until my body calls time on it.  It’s getting a lot better….and it’s going to need to: driving down to Italy this summer and, hopefully, moving house.  Hibernation beckons thereafter….until Christmas.

    Liz

  • Looks like my husband and you have pretty similar diagnosis. His primary is unknown but he is hpv 16 pos scc of oropharynx stage 1. I hope you are having a great recovery.  

  • yes, doing pretty well.. just adapting to the 'new' me.. Relieved

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..