Hello

everyone is welcome here good luck with your consult

Hi PassengerPigeon, of course it's ok that you are here, and you are very welcome. You can ask or say anything on here, we are all here to answer any questions or offer any advice we can.  When or if you are ready to, you can tell us how things are with you. You can ask anything you want, there is no such thing as a silly question, and no judgement here.

Ray.

PassengerPigeon said:

hope it’s ok I am here…

It’s great that you are. There are lots of helpful and encouraging survivors and thrivers here. Whereabouts in the world are you? 

Hi and welcome from me.

Hi we’re all happy to help. I’m Hazel 7 years post treatment  right palentine  tonsil HPV with 7 lymph nodes. Living a great life now. 

Good luck with 2 nd appointment 

Hazel 

Hi PP

Welcome to our community.

This time last year I was diagnosed HPV+ left tonsil and lymph nodes. Similar to you.

Have come through treatment early this year and now life is generally back to normal, but it was a tough journey in the months post treatment.

So, here to help and advise if needed.

Best wishes and do stay in touch.

MickyC

I was told by the surgeon that I was a great Tors candidate followed by radiation. However the radiology oncologist told me this morning that the tumor board discussed my case yesterday and felt it would be in my best interest to skip surgery and go straight to radiation. They want to avoid the triple effects that come from surgery, radiation, and chemo... I admit, as frightened as I was about surgery, I was somehow less frightened than of the radiation and chemo. Doctor did his best to encourage me stating the surgeon who biopsies the site last week pretty much got all the tumor since it was so small - what we are dealing with is the lymph nodes now and whatever microscopic cancer cells remain in my left palatine tonsil area. That he didn't think my qol would suffer a lot....

I meet with MSK next week - and he actually seemed happy I am going there. (He completed his residency there, but moved here because of his family.)

Somehow I find I'm feeling more lost in all of this than yesterday. Was surgery a good thing now off the table? Is radiation/chemo better? 

 Thanks!

Would like to hear how things went for you as you traveled down the road. If you care to share - I believe I’m open to private messages now 

Hi again.

Would be happy to share. Have sent connect request if you would care to connect.

MickyC

PassengerPigeon said:

Somehow I find I'm feeling more lost in all of this than yesterday. Was surgery a good thing now off the table? Is radiation/chemo better? 

I couldn’t have surgery which would have resulted in huge life changing consequences. I had six weeks of RT and nearly seven years later I’m fit and well.