Squamous tongue and lymph node cancer

  • 28 replies
  • 151 subscribers
  • 539 views

Husband, 72 has had tests and has been diagnosed with cancer. He s scheduled to have radiotherapy. Surgery not an option and chemo not helpful due to his age. No results for the final scan he had before rt referral because the hospital lost them so this has been quite a wait. (First symptoms last August, treated with two rounds of antibiotics before he got a referral in January 2025 to HNT. Obviously very worried but not clear on length and frequency of rt sessions other than expected to be given over 5 weeks. Would appreciate any advice of experience with this type of disease and treatment. Feel lost.

  • Hi and welcome. So sorry to hear about your husband. 
    I was 68 when I was diagnosed with inoperable throat cancer. I was treated with six weeks of RT and I’m over six years clear. 
    Each session lasts around 15/20 minutes though the actual treatment is about 5. 
    There is little to report for the first two weeks but after that discomfort ramps up to pain which is pretty awful. If your husband is offered a feeding tube he should grab the chance. He likely won’t be able to swallow even pain relief let alone food for a few weeks. 
    All this is a real challenge but doable. 
    He will need help from you but you also need to look after yourself and make some time apart, even if just for coffee with a friend. It will be a challenge for you too. 
    Has he had his mask made yet? 

    Have a look at this really useful thread 

    https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/diagnosis-and-treatment/287136/helpful-tips-for-those-about-to-start-treatment

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • PS

    Oh and stay with us. There’s always somebody around to talk to and no question is silly. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Topsymum, welcome to the group, sorry to hear your husband has had this diagnosis, we are all here to help if we can. The RT is usually given every weekday for 5 to 6 weeks. There are many on here who have just had RT with good results. The RT is the main treatment and gives very high cure rates. Stick with us and ask any questions you have.

    Ray

  • Thank you so much for your helpful reply. He has to see radiotherapy dr tomorrow for the first time. He is really terrific about what lies ahead. His ENT dr in York gave him a very scary synopsis about what lays ahead but then said,’But some people sail through it’.  His teeth were checked and good. I suppose more will become clearer following the rt appointment tomorrow. However it was so helpful to hear you have been six years clear. Long may it continue.

    Lynda
  • Terrified, not terrific.

    Lynda
  • Thank you so much for your reply. Your help is much appreciated.

    Lynda

    Lynda
  • Can I ask who Topsy is? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Topsymum, welcome to our lovely community. Sorry to hear about your husband. I also couldn’t have surgery. I had chemo and radiotherapy for 6 weeks. I am now 7 months clear of treatment and very happy to say I am now in remission. Radiotherapy completely destroyed everything in terms of cancer. As soon as my mask was ready my sessions were 11 minutes with a total of 15-25, including waiting and changing times. The radiotherapy teams are very friendly and supportive. 
    Wishing you both all the best. Stay with us, ask anything at anytime. 
    Denise T2N1M0 HPV+16 Tonsil and lymph node. 

  • FormerMember
    FormerMember in reply to Topsymum

    Hi

    It is a scary time for patients, family and carers, but the treatment has great success rates....as others have stated the first 2-3 weeks are uneventful then the side effects kick in...some do tolerate the treatment better than others...I finished treatment for tonsil cancer HPV16+ in June 2023...been on a few Sunshine breaks since...play golf....swim....yes the treatment can be harsh but it is soon over and we start on the road to recovery....

    Take care 

    Peter