Head neck scc oropharynx HPV pos 16 unknown primary

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I’m not getting satisfactory answers from the drs. 
has anyone had this?  My husband completed ,chemo and radiation last month. We are waiting now for pet scan in April.  The unknown primary is worrying me. Drs say it has to be in the oropharynx are but even having the tonsillectomy, nothing was found.   now thanks to this treatment he has no taste so he is only drinking boost.   I want him well and am so worried I hope I can get some reassurance.   

before he began treatment they did another ct now he has a 2-3 mm lung nodule.  I cannot live w this worry.  They will check that at his pet scan in April.  

  • I’m just worried because he was a smoker when diagnosed. He slipped a few times during treatment.  

    There is nothing you can do about it. Try to concentrate on something you can change like maybe that break away I mentioned earlier. Treatment failure is really rare. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • You are right. I know that. It’s just my mind goes crazy with what ifs. I’m trying my best tho. Ty for your support