Hello. Hpv +16 ssc oropharynx stage 1

markmac said:

just finished chemo a month ago. Radiation almost 3 weeks has Anyone have this diagnosis what was your experience 

I started off at T1 on scan but was T2 by the time I got treated. No nodes though so avoided chemotherapy. 
I was eating soft food at 12 weeks but didn’t taste of much. Taste slowly improved but was muted. I wasn’t happy with it till six months. It got better in fits and starts for a couple of years after that. It’s still not what it was but at least I can eat a curry. 

What stage were you when diagnosed and is there a cure for yours?

I had a malformed tonsil for a couple of years before cancer diagnosis...it had then spread to a lymph node in my neck....Chemo and radiotherapy zapped it...

Oncology never really elaborated on the cancer sites....biopsies took out most of the suspect tonsil...

Recovery is tough ...stick in, you will get through...I was 68 when diagnosed...

Keep posting ...plenty of support and advice from the posters on this forum....they have been there....done it

Peter

T2N1M0...my PET/CT scan was clear in September 2023 no sign of cancer...been on sunshine holidays, playing sports, swimming etc....

Has anyone had unknown primary this scares me even tho the chemo kills whatever radiation doesn’t. Could primary be in a totally different location other than head or neck?  

also can hpv travel to lung. ?  I have a 3 mm nodule lower left lobe that is worrying me. They cannot check it until my 3 mo follow up. It will grow large by then. This was discovered 11/24 my pet scan isn’t til April 

markmac said:

Could primary be in a totally different location other than head or neck?  

If it’s an HPV positive SCC then no. 

markmac said:

also can hpv travel to lung

Yes but it’s not common 

markmac said:

 I have a 3 mm nodule lower left lobe that is worrying me. They cannot check it until my 3 mo follow up.

That is tiny. 
I have 6mm and a 9mm nodules. They are really common in older people and are a hangover from a previous chest infection. I had 2CTs 3 months apart. Both nodules were unchanged. 

markmac said:

Has anyone had unknown primary

Check out Peter’s profile. Jyst click on his name PFJTHS 

What stage was it and was it tonsil cancer?

Stage 2 tonsil cancer..... T2N1M0 Tonsil cancer HPV16 plus 

Are you or were you s smoker?