Nasopharyngeal cancer.

Hi Lindy1818 

Im sure somebody will pop in soon but meanwhile have a look through the search I made. Sometimes people put details in their profile so it’s worth looking there once you find a post that’s relevant. 

https://community.macmillan.org.uk/search?q=Nasopharyngeal#serpq=Nasopharyngeal&serp=1&serptag='head%20and%20neck%20cancer'

Has your husband been offered Proton? 

Hi Lindy

I dip in and out the forum and usually anything I see someone has already posted with a response better then I could have. I do have experience with Nasopharyngeal cancer. I had a lump on my neck with no other symptoms and 3weeks later I'm walking out of of hospital with the dreaded green folder (this might be a Bath RUH thing). Please ask anything on here and I'll be able to give you my personal experience. I will say that treatment was tough and I hit the lowest point of my life but there is hope and over a year on I'm feeling good and I'm back working although wish I was retired but at 44 that's not feasible sadly. 

If your husband is having chemo radiotherapy it starts to get really draining a couple of weeks into the radiotherpy, he'll be tired and feel pretty rubbish and then all the other side effects will start such as taste loss, mucus and saliva diminishing. 

I would recommend having a chat about the Chemo drug i'm assuming it will be Cisplatin, this stuff can cause tinnitus after a few sessions so always keep the consultant informed. If you have the option to have a PEG / RIG take it its seems brutal that you'd need it but i was so grateful of it near the end of treatment. I had no choice i was told i was having it.

The main thing that kept me going was my wife  and kids just knowing they were there, carried on as normal when we had too and let me rest when i needed it. 

Ask anything and i'll keep an eye on the forum and give you my experiences.

Wishing you all the best

Alex