Confusion

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Hi sorry its me again  i am all confused and no further forward 

When i had my camera exam the ent said i can see what looks like a cyst but it dosnts look suspicious 

When the report is wrote out it has no mention of the cyst just this assmetry at the base of the tongie so i dont know if there is a cyst of they mean the same im quite confused .

He did say no red flags but no explanation as to why the scan or the biopsy , do i question this futher or just let them get on with it ,its stressing me out a lot has anyone heard of asmetry as a diagnosis as thats what my letter says lpr (silent reflux) mild assmetry left side base of tongue

Thanks for listening be glad when all over had ct waiting for biopsy appt  

  • asmetry as a diagnosis

    Asymmetry isn’t a diagnosis. It’s a description of how the tongue looks, uneven on one side. One side doesn't match the other in terms of size or shape

     I know you’re worried and I’ve tried to put your mind at rest but please please try to hang on till your next appointment.

    Nobody else has an answer and you’ve asked lots of times  

    The reply you got from your consultant’s secretary is very reassuring  

    Can you remind me when your appointment is? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I had my ct scan yesterday i am waiting for appt for biopsy thanks for listening and being patient it was jsut with getting 2 diffrent things from saying a cyst to the slight assmetry but not mentionkng cyst on report had me quite confused altough the report does say no red flags .thank you i will try to refrain from posting snd keep you all update 

  • i will try to refrain from posting

    You don’t need to do that, but do let us know what happens. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Do you think he would of told me if he saw anything , he used the camera up my throat and i thought he had seen tbe cyst i guess him putting no red flags is good , but its so fustrating not knowing whats going on and things changing a i thohght was cyst and now the symettry with no explanation of the change of wording and when i went to see my dr and she said its probably nothing because of no  red flags and she said he would of mentioned if he saw somethkng suspicious  my only symptom is sore throat and ears but i also have reflux , it jsut makes me think hes not telling me everything

  • You have to remember that medics have their own language. His report is a case in point. 
    Im a slave to reflux if I don’t watch what I eat and I know it can cause any number of things including sore throat. 
    It’s a case of just hanging on till the next appointment. 
    Do you have a date for the biopsy or does it depend on the results of the CT? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Do you think he would of told me if he saw anything

    Yes. When I had a scope my consultant said there was an area of concern and I had a head and neck MRI. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I dont have a date said have ct so they can then do biopsy very vague with what they saying so the assmetry could still bt there because of a cyst i guess it gets confusing when they say one thing to you and something else is written down it gets confusing and scary im on own most of the time as son and hubby work snd don't really have a friends network ,i had cyst in my head til the report came through 

    Thanks for listening 

  • When he scoped me thats when he said there something there dosnt look suspicious so dont worry sair jt several times but now no mention of a cyst 

  • Hi yes he would have said if he had any concerns when I had my scope I was told straight away I had suspected  cancer they are the experts they do what they do regularly. Well done on getting through the scan. After my scope I was quickly put through the system ,hopefully your biopsy won’t be too long a wait. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • something there dosnt look suspicious so dont worry

    If nothing shows up on the scan they won’t biopsy so fingers crossed. You should hear by the end of next week. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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