Larengetomy

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Hi I got told I had cancer and needed a larengetomy on Christmas Eve I am so worried about absolutely everything will I still have a good quality of life after operation I am so overwhelmed by all of this any advice for anxiety would be gratefully received 

  • Hello Bella. So sorry to read your news. 
    While a laryngectomy is certainly life changing there is indeed a good life to be had after you recover. 
    My first husband had the operation and recovered well, returned  to a very demanding job and was his usual social self. 
    We have Community Champs here who are larys and hopefully they will pop on with some words of advice   

    There is a good website you could look at too

    https://www.laryngectomy.org.uk/

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • It's a big op yes but outcomes are good and my best friend has had this for throat Cancer. He lives a full life and eats most but not all foods..

    There will be changes to your lifestyle yes. I suggest a good book on the subject by Itsaak brook, it's called the total Laryngectomy and it is available from Amazon.

    I wish you all the best and suggest you listen to your team and be patient. 

  • Good evening, Bellabimba14. I understand your concerns. I had mine done in 2010 and made a full recovery, and in most cases, you will be able to have some sort of normal voice by having a voice valve fitted. It all sounds scary, but take things a day at a time, and everything will come together, like getting used to breathing through your neck and losing smell in a lot of cases. Also you will have a base plate that sticks around the stoma site ( hole in the neck ) with a filter to help condition the air (HME), the stoma acts as a sort of replacement for your nose and when you sneeze or blow your nose it comes out of the stoma also if you a physically sick. I have never had any issues with being a laryngectomee and don't worry about what the public thinks as i have never had bad experiences, even my two-year-old grandson finds it interesting. You should be able to eat and drink ok , everything takes time to adapt and accept the new you, i still live a normal life and have just come back from Germany with my brothers and sister. Please feel free to contact us if you have any questions, I'm not an anxious person, i know the operation is quite long but all i remember is going to sleep and waking up with no speech, you will be in good hands. Wishing you all the best,take care.

                                                                      Chris x

    Its sometimes not easy but its worth it ! 

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  • Thanks, Dani , wishing you a Happy New Year. xx

                                                              Chris 

    Its sometimes not easy but its worth it ! 

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  • Thanks Chris. All my best wishes for a happy and fulfilling 2025 xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thankyou so much for your reassurance 

  • Hi Dani thanks for thinking of me and Chris has explained everything I would have 

    Happy New Year everyone 

    Tony xx 

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    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink Laryngectomy and OC survivor 

    Lead Volunteer for Hampshire MacMillan Buddy Service

  • You are welcome, try and keep yourself busy to occupy your mind and take your mind off the operation.

                                Chris 

    Its sometimes not easy but its worth it ! 

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