New here biopsy results 31/12

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Hi

I had a phone call 31/12 - abnormal cells in soft palate and lymph node, abnormal Cells and some I believe cancerous cells from tonsil biopsy. Consultant said they would therefore be treating all as cancer. No options for surgery in soft palate so radiotherapy… seeing oncologist 7/1/25. 

I have no idea what to expect. I’ve looked at all of the side effects on nhs website and read a few posts describing treatment as brutal. Just thought I’d come on here and say hi. Wave tone2 

  • Hi Lorr 0, Welcome to our group. Sorry you have had this diagnosis, unfortunately the treatment is brutal but doable, and it gives very high cure rates of up to 90%. Once you have seen the oncologist and have had everything explained you will feel better about it all, take a list of questions you want to ask, otherwise you will forget to ask. There are many on of on here who have had this treatment, and are here to tell the tale, and to help others through theirs. Any worries or questions just ask, someone will always answer if they can. Stay off Google it is mostly outdated information at best, Stick with us.

     

    Ray.   

  • Hi   and welcome to our little group.

    I had six weeks RT for a cancer at the back of my tongue, extending towards a tonsil. This wasn't operable but the RT did the trick. 

    read a few posts describing treatment as brutal

    It's not a word I like because it infers it's so bad nobody can cope. This isn't the case. We all get through and the side effects can be mitigated. Yes it's a few weeks of madness but it doesn't last forever. I am now nearing six years clear of my last RT and apart from a dry mouth I am well.

    Hang around. You are going to have questions and there is always somebody to talk to

    I put a sort of diary up as a blog with some details if you fancy looking at the link My cancer

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

     

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thanks for replying  x I will ask questions next Tuesday (7/1/25) re surgery as I can feel it with almost every swallow. I don’t actually know why they ‘took’ when I was under general for the biopsy as I was not ‘with it’ when the consultant visited 

  • Dani I have had a look at your blog and saved it for future reference. Might start one myself… thanks again x 

  • Hi Lorr

    T2N1M0 Tonsil cancer HPV16+ Chemoradio finished June 2023

    The treatment is very challenging no point in trying to dress it up as anything else.

    There is around a 90% cure rate which makes it very worthwhile.

    Feeding tubes aid recovery, ask oncology about this.

    As others have stated try to stay away from Dr Google....use NHS and Macmillan sites.

    Keep the forum updated with your progress, plenty of support and sound advice available from posters who have walked the treatment walk.

    Peter

  • Might start one myself

    Do it. When you feel out of control with what’s happening to you it gives you a place where you do have control. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

     

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks for replying  x I will ask questions next Tuesday

    Take somebody in with you. An extra pair of ears picks up what you don’t. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

     

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi 

    I’m now heading towards 7 years post chemo radiotherapy I too had soft palate tonsil and lymph nodes it’s brutal but if I can do it anyone can. Welcome to our friendly group

    Ask any  questions 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks - that was a hell of a lot of treatment you went through!