Hi
I had a phone call 31/12 - abnormal cells in soft palate and lymph node, abnormal Cells and some I believe cancerous cells from tonsil biopsy. Consultant said they would therefore be treating all as cancer. No options for surgery in soft palate so radiotherapy… seeing oncologist 7/1/25.
I have no idea what to expect. I’ve looked at all of the side effects on nhs website and read a few posts describing treatment as brutal. Just thought I’d come on here and say hi.
Hi Lorr 0, Welcome to our group. Sorry you have had this diagnosis, unfortunately the treatment is brutal but doable, and it gives very high cure rates of up to 90%. Once you have seen the oncologist and have had everything explained you will feel better about it all, take a list of questions you want to ask, otherwise you will forget to ask. There are many on of on here who have had this treatment, and are here to tell the tale, and to help others through theirs. Any worries or questions just ask, someone will always answer if they can. Stay off Google it is mostly outdated information at best, Stick with us.
Ray.
Hi Lorr O and welcome to our little group.
I had six weeks RT for a cancer at the back of my tongue, extending towards a tonsil. This wasn't operable but the RT did the trick.
read a few posts describing treatment as brutal
It's not a word I like because it infers it's so bad nobody can cope. This isn't the case. We all get through and the side effects can be mitigated. Yes it's a few weeks of madness but it doesn't last forever. I am now nearing six years clear of my last RT and apart from a dry mouth I am well.
Hang around. You are going to have questions and there is always somebody to talk to
I put a sort of diary up as a blog with some details if you fancy looking at the link My cancer
Hi Lorr
T2N1M0 Tonsil cancer HPV16+ Chemoradio finished June 2023
The treatment is very challenging no point in trying to dress it up as anything else.
There is around a 90% cure rate which makes it very worthwhile.
Feeding tubes aid recovery, ask oncology about this.
As others have stated try to stay away from Dr Google....use NHS and Macmillan sites.
Keep the forum updated with your progress, plenty of support and sound advice available from posters who have walked the treatment walk.
Peter
Might start one myself
Do it. When you feel out of control with what’s happening to you it gives you a place where you do have control.
Thanks for replying x I will ask questions next Tuesday
Take somebody in with you. An extra pair of ears picks up what you don’t.
Hi
I’m now heading towards 7 years post chemo radiotherapy I too had soft palate tonsil and lymph nodes it’s brutal but if I can do it anyone can. Welcome to our friendly group
Ask any questions
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks - that was a hell of a lot of treatment you went through!
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007