Suffering long term side effects from radical radiography and chemo. (It's tough)

Hi Barry. So sorry that you aren’t getting the aftercare you obviously need. My cancer was diagnosed in 2018 and I am discharged from routine review with manageable side effects. I still religiously do my trismus and swallow/jaw exercises as fibrosis is a lifelong problem. 

It sounds as if you need some physio and some proper direction from a late effects clinic. Many hospitals have them. Whereabouts are you? 

Thanks for reply . I am lined up for physio . On waiting list . I was told about exercise s I will try and remember them each  day . I will do them alongside my stretches that I do . 

Thanks again 

Ps I'm in Bridlington 

Hi Barry

Sorry to hear you having such a rough time. It's no wonder you have health anxiety.  I have had two Malignant Melanomas (which were removed, along with mass muscle tissue) and now I have cancer in my tonsil and my left neck lymph node.  Luckily for me the Melanomas were removed around 30 years ago and we have caught my tonsil cancer early enough that (hopefully) I should only need surgery.  But my point is, even after the success of the Melanoma surgery, and, hopefully, a fairly simple surgery for the throat.  I still have health anxiety and am always thinking, is it cancer again.  It is normal.  However, I have found great comfort from the good people on this support forum who knows exactly what we are all going through.  Sending you virtual hugs.

Hazel x

Thank you Hazel for your helpful and kind message . I was told about this forum yesterday from a nurse and already it is helping. I really hope your tonsil cancer goes when you go through the treatment . Will say a pray for you.  Please keep us informed . God bless Hazel and thanks again 

Barry

PS23 said:

Ps I'm in Bridlington

Were you treated in Hull? It’s worth contacting them to see if there is a late effects clinic. 
RadioactiveRaz  Hazel. Is there a late effects clinic in Leeds? 

Thanks Berry, yes, I will come on and tell you how it went.  I am very optimistic after hearing from everyone on here, it's been a blessing.

Take care Barry, I'm sure we will 'speak' again.

God bless you too.

Hazel x

Yes treated in Cottingham hull 

Thanks Hazel.

Take care . I'm sure you will be okay 

Barry 

PS23 said:

Yes treated in Cottingham hull 

Is there a Maggie’s near you. It’s worth having a look at going to see if they can help your anxiety. 
Also the mouth cancer foundation have weekly online support group meetings on a Monday. I can give you a link if you are interested. I pop in now and then to say hello 

Sadly no Nottingham is the nearest. They are trying g but it’s all about the money. 
hxx