Newbie - just finished treatment

Hi and well done.  I agree with the tonsil pain!  At 5 months post treatment I am once again needing to shave my entire face so your beard may well return.  Just remember that the RT continues to build for 2 - 3 weeks post the last session; so expect to get a little worse but fingers cross it will not.

Stay on here for tips and tricks when the recovery gets tough.  Remember this is now a marathon and there will be some backward steps on your journey to the new you, but you will get there.

McRandom said:

Been following the discussions for some time but this is my first time posting,

Hello and welcome.

McRandom said:

As I say, I know everyone's experience is different but just wanted to share my own to show people that not everyone will go through the worst of the side effects.

First well done on getting through so well

Second thank you for being so kind to let all the folk here know that this treatment is doable. Looking through you’ll see how frightened people are. I’m always counselling others that nobody gets all the side effects documented and many do very well indeed. You’re a case in point so thank you again. 

I hope your recovery goes well. My advice is don’t rush and be kind to yourself 

Thank you PFJTHS and Beesuit. I have been told that the next few weeks could get worse before I start seeing any improvements and am under no illusions that I am nowhere near the end of this journey but I must say that I have great support network of my wife, both our families and the incredible team at the cancer centre.

I went into treatment expecting the worst and hoping for the best and have just been taking it day by day. Some days are harder than others and at times you do feel a bit sorry for yourself (and it's ok to feel like that) but then I remember why I am putting myself through this. 

I have also been told by a few that as far as cancers go this is one of the better ones to get due to the excellent cure rates so I cling to that and put my faith in the medical professionals.

Hi ya,

That's sounds promising that your treatment wasn't too problematic and your side effects were what everyone else suffered from.

My treatment all kicks off on Wednesday, I'm not looking forward to it to say the least, but in order to getting rid of this demon I have to do this.

Glad you have come out the other side and I hope that you continue getting better and get back to yourself. The journey is a long one. I had both my tonsils and adenoids out at the age of 14 I will never forget the pain from it all ,it still haunts me to this day but I got through it. So yes I feel your pain. When I had my Panedoscopy and they took biopsies at the back of my throat and the areas where my tonsils were taken out that was painful too

Thanks for posting 

Sarah

Thank you for sharing this. It's good to know that not everyone finds the treatment 'brutal'. My husband is in week 2 of 6 weeks of radiation with 1 round of chemotherapy (cisplatin) a week. So far it has all gone well. He has had two rounds of chemo with no problems. I know it is early days with the radiation and we are well prepared for all the possible side effects. In the mean time he is keeping positive and stories like this really help. 

I hope your recovery goes just as well!

Jane

Hi Jane. I'm at the beginning of what sounds like a similar plan. My wife did the Facebook Groups when I was diagnosed which I think scared her more than needed. I have one chemo and 2 radiotherapiss of a 6 week plan. Terrible nights "sleep" last night which I think was due to anti sickness medicine which I'm going to skip tonight. Original cancer was at base of tongue spreading to lymph node.

Wishing you and hubby well

Hi  Jane 

Well done for hubby getting through the first couple of weeks....not everyone gets hit with the nasty side effects....  some do miss the worst of the treatment nasties....hopefully your hubby will do this....keep the forum updated....plenty of tips and advice from patients and carers who walked the walk.

Peter

Hi 62

Best to stay away from Fbook and Google....stick with this forum all posts are very helpful and honest....posters have been there....done it....monitored by Macmillan.

Anti sickness pills come with their own issues, hiccups are common and can be helped by sucking on ice cubes.

Peter

Haha! I have was hiccuping for England yesterday! 

62somerset said:

Haha! I have was hiccuping for England yesterday! 

Hello

welcome to our little group.