Tongue cancer

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Hi all, I would like some help and advice regarding stage 1 tongue cancer. I had an operation for this in December 2022 and unfortunately it returned this April 2024. I’ve since had another operation 3 weeks ago and the results showed a margin of 3mm and apparently it should be over 5mm. The surgeon has suggested another operation very soon, which I find very daunting as my tongue is not healed yet. Can anyone give any advice please? 

  • Hi  

    I can’t help with the surgery as mine was inoperable and I had to go straight to RT but to be honest I’d go with what my surgeon told me. Is there any point in waiting for a surgical wound to heal if there may still be cancer cells there. Quick surgery must surely be your best shot. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thanks Beesuit I appreciated reading your blog and realise another operation is probably the way forward. I’ll be having radiotherapy this time as well 

  • Stay with us. There’s lots of people here to help you through. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Sue Essex. I  couldn’t have surgery I was straight into chemo and radiotherapy. Like Dani says I would take nite of what the surgeon says. Why wait I would want it done as soon as possible , if you wait for tongue to heal it’s only got to heal again if that makes sense. 

    Hazelm

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help