Biopsy on lump on tongue

Thank you Hazel appreciate your response. 

We will take notes of what's said in morning. Keep updated x

Good luck for today, Claire. xx

Thank you Dani x

Hi all unfortunately I've had the news I was dreading. It is cancer. SCC. Dr thinks it's contained in my tongue but the mri, ultrasound, ct scan will determine if its spread.

I'm booked in for surgery 22nd removal of lesion on tongue, skin from my arm , stomach. Unknown yet if I'll need chemo or radiotherapy 

I'm scared and shocked of what's in front of me. I have a baby & 4 year old that I have to be strong for as they mean everything to me. I'm in a nightmare and future is bleak. 

Please could you send me positive news x

Hi Tigwrliky sorry you’ve joined the clib but as qeebw all

sqos head and neck cancers respond very well to treatment you’re in the sustem

now youve got a date  things will

move quickly. I’ve a friend who was 50 plus when she was diagnosed she’s still here living het  life.  It’s a lot to take in we’ve all been there it’s devastating news to hear but you will make it through this. I can’t advertise a link but if on a popular social network  type young tongues in and that will lead you to another group as well as us in here,

hugs Hazel 

Oh Claire. Not the news you wanted. Have a look at Young Tongues here https://www.youngtonguesglobal.com/

They have a very active F***B**k group full of people just like you. I know it sounds like the end of the world just now and there is a fair way to go before you are well but you will be. 
Stay with us as well. There are not so many young tongues here but we are good at lots of stuff to help you along. 

Claire - let’s be honest, this situation is s*** and it’s perfectly ok to feel s*** about it. Be angry, upset, cry, scream or shout - I still find myself doing one or all of them even now!

Its gonna be a bit of a rollercoaster but rest assured - the system, the people and networks (like this one) will provide you with a world of help, support and guidance to get you through it.

News like this fills you with a feeling of impending doom which again, is totally normal and equally rational to have such thoughts but read/understand what the others have already said in this thread; treatable, survivable and a proper networks of support are out there to help you.

Easy words to say but keep strong and focus on each hurdle one at a time to avoid getting overwhelmed. Your littles are obviously the focus and your partner will no doubt be the rock to support you through it.

Please look after yourself and feel free to share any anxieties, concerns or questions on here.

Best wishes

Reevesy

Hi Tigerlilly 

I am sorry that they have diagnosed cancer and believe me when I say we have all been in the horrible place that I am sure you find yourself in at the moment. The yreatment can be extremely tough but does have some great results with a 90%cure rate!

I had SCC T4 in right tonsil which  had spread to base of tongue ,left tonsil and several lymph nodes.

The Radiotherapy and chemos took their toll but I have had two clear scopes( camera up nose looking at throat) and a good MRI result looking like the treatment worked

Stay off google, trust your team and make sure you have friends and family around you to help with the appointments and your lovely young children x

It may seem totally overwhelming at the moment but you will get through this and like many of us come through the other side . For now just enjoy your favourite foods and activities .This group are very supportive and there is always someone here who will read your post and respond you are not alone x

Debbie

Sorry to hear your diagnosis.

I would also recommend the FB Young Tongues group - it is a mix of UK and US based folks, with many people on there who have faced exactly the pathway you are now on. They are an extremely helpful and friendly bunch (as are people on here!!).

The scans will show more as you say - if it is contained within the tongue (as mine was), then it may be that surgery on its own will be sufficient, with no need for radio/chemo. I didn't need the reconstruction involving skin from forearm etc, but it is very common in SCC of the tongue if the area involved is deemed to be too large/awkward to heal by itself.

Tongue Cancer SCC T1N0M0 partial glossectomy Jan 24

Thankyou all for your kind positive comments. I will look at that group you advised. Just good yo hear success stories that I will recover and get better as so many of you on here have. You're all an inspiration to me. It is support with family friends networks that will get me through. 

I'm just scared of the unknown . I will learn more next week if it's spread and the correct treatment I will need. At a minimum though it will be surgery & reconstruction with lymph node removal. 

Will learn here and by medical staff what my recovery will really be like to I can plan for my babies x