Thanks to all who have posted their blogs, it was a very interesting weekend read - knowing what I am facing. I'm a 53 yr old female, non smoker, light drinker. Had a cold just before Christmas and sore throat, cold shifted but sore throat remained - not too sore just scratcy and lumpy. Mid Jan got the torch out and swollen right tonsil with white patches so I thought I had tonsilitis so followed nhs guidelines but it didn't clear. Had swabs for strep followed by bloods for Glandular fever which all came back clear. Doctor rang me and asked for a photo of tonsils which I gladly took and he put me on a cancer pathway. Next day got a phonecall from the hostpital for ENT appointment which was the next day ( super quick, thanks NHS). I saw the consultant who wasn't overly concerned, she said they were inclusion cysts and would probably settle on their own but thank goodness she took a biopsy to put my mind at rest - not the nicest thing to have done. I also had the camera up my nose and down my throat which didn't show anything suspicious. No neck lumps and no swollen lymph's. In the meantime my second molar on the left side bottom jaw sheared off chewing a roast potato so had to have that repaired ( I wonder if it's related)? Waited 10 days and the call came in last Tursday afternoon to say that they had found cancerous cells, even the consultant was shocked. Had mri and ct scans yesterday and they are having their team meeting on Thursday to discuss what the plan is - the waiting is hell. I have a husband and two teenage boys and telling them was awful but I don't think they realise yet what is going to happen - any advice appreciated. Trying to eat all I can for now as I know it's going to be tough
Did you get anti sickness drugs
i have vomiting phobia
No ...my CNS told me not to worry, 4 chemos out of 6 was quite normal...Cisplatin is quite a harsh treatment...many patients are not able to take up the full quota
Ondansetron, metoclopramide, dexamethasone, lorazepam, levomepromazine.
The oncology team keep well on top of controlling sickness
Controlling yes
but I was informed preventative
all bull shit
Different patients have different reactions to the treatment, I would be lying if I led you to believe it was easy, please speak to your oncology team, the alternative to not going ahead is unthinkable....this forum will help you get through the treatment.
Peter
Thank you for the reply to my email earlier, there are some really helpful people & good advice on these forums as you mentioned & im much more assured than trawling google, i was getting really down reading from there & youtube..
No worries you’re welcome
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 7years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
No worries you’re welcome
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 7years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
some really helpful people & good advice on these forums
Hi sparkydog
Welcome to our little community.
Tell us a bit about yourself if you feel up to it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
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