Saying hello

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New on here. 

Just found out recently that I have neck and throat cancer, which has spread to my lungs. 

I've had a Rig fitted in my stomach for food etc. 

Just finished 5 days radiotherapy and on break till the next 5 days worth. 

It's been a mental roller coaster so far, but I just keep plodding lol. 

  • Hi Casboy ( are you from Castleford) 

    sorry you’ve joined the club none of us wanted to join. We’re a small friendly bunch. I had 35 radiotherapy snd 2 chrmi now 5 years post treatment. Any questions ask someone will always  try to help. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Casboy

    All you can do is keep going...  It's a challenge but we get through it.  This is a brilliant place for support, advice and comfort.  I used the search button so often and it a topic hadn't been covered popped a question on here. 

    Lisa 

  • Hi Casboy

    Welcome to this brilliant little community ,sorry you've joined the head and beck cancer club , yes it is an emotional rollercoaster but just keep getting through each day one day at a time and no matter how crazy it may feel at times dont lose hope x

    Ask any questions, drop in for a rant or an emotional outburst this lovely lot will offer you virtual hugs drinks and above all an understanding ear x

    Good luck with the rest of your treatment

     Debbie

  • Hello   and welcome from me too. How many weeks radiotherapy are you getting and have you been offered immunotherapy?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi yes I'm in castleford lol

  • I've had 5 days radiotherapy, break now and the plan is another 5 days radiotherapy. 

    But might change on Friday when I see the doc. 

    I was told 10 days radiotherapy and chemotherapy for palliative care. 

  • Hi from me too. Sorry to be here, but this place is like a family. Always someone to be when you beed it. Guys will know if more people in here with similar experiences. Good luck with all,

    marta x

  • Hi Casboy

    Welcome, its not an easy ride but trust your team & stay strong. There is so many inspirational people you will speak to in the waiting rooms & on here that have walked in your shoes & we are here to say you can get through this. Any questions you feel embarrassed to ask there will always be someone here to help you through.

    Good luck

  • I was told 10 days radiotherapy and chemotherapy for palliative care. 

    I really hope that this holds things for a while and that you have a long time with your family. Please do ask about immunotherapy. There have been some good results with lung mets. 
    We have a member here who has been on Pembrolizumab for two years and is stable and I have a contact who has been on Nivolumab for five years. 
    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank u for the support. 

    I was told my markers wasn't right for immunotherapy Pensive