Post surgery pain and lifestyle challenges

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My mom has mouth cancer and part of her jaw was removed during surgery. Doctor used part of her chest to put the flap around the area removed during the surgery 

Now effectively about 30-35% of her mouth is blocked, she cant swallow and mostly live on liquid/pureed diet.

Worryingly she has loads of pain around the neck and area where the part was taken for surgery, we visited the doc who ran a few scan , did biopsy and all were clear. We also did physio to try to reudce pain but nothing worked.

It kills me from inside to see her like this. Can anyone share any suggestions or doctors that i can reach out. My mom lives in india

  • Hi Paddy, how long ago was your mum’s surgery?  Physio has to be ongoing sometimes for a long time. 
    Has your mum asked whether the pain could be a neuropathy? Ordinary pain killers don’t work but there are some that do help. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Paddy. I am so sorry to hear about your mum's situation. The ongoing pain must really be taking a toll on her. Are there any pain clinics where she lives as this might be worth looking into.These clinics are for people with ongoing unresolved pain due to many different issues.  I also live on a pureed diet and liquids as am unable to chew after ops for jaw cancer over a few years but I have no pain so that makes my life much more tolerable. If the pain situation can be resolved then your mum's quality of life will improve dramatically. 

    Wishing her all the best and I do hope her situation can be resolved soon.

    Lyn

    Sophie66

  • Been about 2 years. Did physio but not working. I will explore the neuropathy side as well. Thanks for your response