Hello…I’m a newbie

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Hello

i have had some hoarseness and pain for a few months and over last few weeks it’s got really bad. Doctor pushed for emergency ENT which was today. Arrived, was taken within minutes, few questions then the camera up my nose.. Moved to a different room where the doctor said there’s a tumour and it’s cancer. Saw a lovely cancer nurse.. I’ve to have a CT and biopsy where they will de-bulk the tumour asap.. I was back in car and on way home 40 minutes later. I’m totally shocked. Honestly maybe naively, I thought the worst news I’d get today was it’s suspicious.. 

Where do I even start… I’m a single mum, only entitled to 12 weeks sick pay.. how do you even begin to tell your kids you have cancer.. 

if you’ve read this far thanks! I’d love to feel like I’m not alone..

JB x 

  • Hi JaniceBee, you are defiantly not alone, all of us on here know what it feels like to be told you have cancer. I know it was the last thing. I thought they would tell me. Take comfort in the fact that head and neck cancer respond very well to the treatment, with very high cure rates, many of us on here are living proof of this, and we all here to help you as much as we can. Any questions, just ask, someone will always answer if they can.

    Ray

  • Hi  

    Ray is right. You aren’t alone. So sorry you are here but stay with us there’s lots of help and support here. Once you have a proper diagnosis and treatment plan everything will slot into place and you will feel better. 
    Children are more resilient than we realise so while you feel you have to protect them they do need to know. 
    Macmillan have a leaflet that might help. It’s a bit generalised but it’s a start https://be.macmillan.org.uk/Downloads/CancerInformation/ChildrenAndYoungPeople/MAC5766TalkingtochildrenE2.pdf

    Have a look there. 
    As for sick leave you really are protected by law if you have cancer 

    Give the helpline a ring. The number is at the bottom of my post. There will be somebody to help there. Remember, you do have employee rights. 
    I’ll hunt around for other useful links. 
    EDIT

    This might be if some use 

    https://www.macmillan.org.uk/cancer-information-and-support/get-help/financial-and-work/financial-guidance-help-line

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you so much, I’ll have a look through the links, I really appreciate your reply and support! 

  • Thank you! It’s lovely to hear positive things! 

  • Don’t be frightened of phoning. These guys answering the phone know their stuff. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Thanks.. is online chat an option? I have very little voice and stridor sk phone calls are difficult Disappointed 

  • Yes. Just look at that second link 

    Hang in wrong link 

    I’ll find it 

    Yes here 

    www.macmillan.org.uk/.../get-help

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Janice hee you’re not on your ien you’ve found us here. Taje everythjng one day at a tkne. How old are your children ? They are far more resilient than you May thjnk. Do you have a support network if so use if. There’s a few different hesd n neck csncers when you know more we can tailor our responses. But keep iff dr google ask us on here. 
    hugs Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Hazel

    thanks for replying. My kids are 16 and 18 so not kids kids but as a single parent they’ve always only had me. 
    I have a really good friendship group for support. 
    my GP has been amazing today, the hospital updated my records, she saw it and phoned me. Came out to see me after surgery closed with various medications to help over the weekend. She’s been back in touch with ENT and because of the stridor I think they are admitting me on Monday for biopsy and de bulking?  Assuming I’ll know more after that - does biopsy results take long? 
    staying well away from google as my one hit today told me I’d have a tracheotomy and never speak again See no evil
    kids both out so I’m off for a bath and bed.

    I’m so pleased I joined here. Thank you all! 

    JBx 

  •  Assuming I’ll know more after that - does biopsy results take long? 

    Usually two weeks but because your aren't able to breathe properly they might hurry things up.

    Have you seen your GP about this previously?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge