Hi all, getting pain when either walking for a reasonable distance and also when in car after about 20 minutes. Feels like a tension headache in a arch from top of head to behind ear. Making things miserable to be honest and was curious if anyone has experience of this , hopefully not!!!!!! Many thanks Shaun.

Ps. I have tonsil cancer T4N2C diagnosis, awaiting scan to see if spread to lungs etc.

  • Hi Shaun,

    During radiotherapy, I started getting headaches in the back of my head. Moving my head felt as though my head would fall off, They usually came on at night and went away in an hour or so. I found that neck exercises (particularly left-to-right movements and circling) eased the pain. 
    This went away but has recently returned. I now have some stiffness and fibrosis in my neck. So I am, once again, seeing a connection between headaches and the changes in my neck caused by radiotherapy.  Also, don't underestimate the stress that you are currently under.

    Hope yours improves.


    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • Hi Steve, your right there, alot of thoughts rushing through my head at the moment. Haven't got to the treatment stage yet so guessing cancer is pressing on normal structure of my neck causing this pain.ok when sitting -at the moment! Thanks again shaun