Radiotherapy

Hi Botch69 

How can we help?. Most of us here are experts in oral radiotherapy being at the receiving end. 

Hi . Mine was a tumour on side of my tongue. I've had hemi glossectomy and reconstruction.  Now on week four of chemoradiotherepy. My mouth is disgusting and really getting me down . I'm constantly gagging and so sore. Struggling to sleep with the constant dribble and cough. Any help would be welcome .

Hi 

I didn’t have surgery but I can vouch for how awful radiotherapy is. I kept my mouth as clean as I could with soda bic/salt mouthwash and used every bit of analgesia I could get away with. Morphine and paracetamol plus Caphosol and Difflam. I spat a lot and had kitchennroll to hand every where. By mid week 4 I was on nasogastric tube feeding for 8 weeks. 
Most of us here have had throat cancer

There  is a really useful organisation called young tongues. 
https://www.youngtonguesglobal.com/
It would be worth having a look there. They have a very active social media group full of people like you who have had a  glossectomy 

Best wishes 

Hi Imhad 35 radiotherapy and 2 chemo I had a humidifier in the bedroom which helped with the dry air and made sleeping easier. I also had a nebuliser the hospital,gave me that, the humidifier I bought on Amazon. It does get better but watch out for first few weeks of recovery it can stick around a while. Keep on top,of,pain meds  make sure you’re drinking  and keeping nutrition up. I was ng tube fed for 6 weeks in total. 
Also keep on top of pain meds. 
Hazel 

Thanks Hazel , my good friend bought me a cool humidifier and I've slept well since using it. I've the ng now so can get all the meds I need in. One more chemo 10 more radiotherapy and I'm done . Glad to hear your doing well . 

• Rachel x

• What have I in store for the next few weeks,do you think? Today I have a weird cough . Fluid . ??