Hello
l have just completed 6 weeks of RT daily with 5 lots of chemo over 5 weeks for Tonsillar cancer HPV+. The offending tonsil was removed & used for histology. The final RT was on Friday. Before l ask my question, sincere thanks to every single contributor, it has helped greatly since day 1 of my diagnosis when l began dipping into this website.
During the treatment l managed pretty well. My throat became sore towards the end and taste went out the door; l continued to eat solids, even though they tasted either bland or disgusting. I did not lose any weight until the last week from 54 to 53.6 kilosThe skin on my neck gradually became red and itchy towards the last week of RT. Since then it has worsened & l was given Flamazine to put on it after RT. Equally, l had been managing on soluble paracetamol for pain relief, but was given oramorph to take with it when needed. Since the last session the pain has suddenly gone wild. Equally my neck looks & feels awful. I am taking the oramorph & it does definitely help. Equally, have swapped the soluble paracetamol for liquid as the effervescent bubbles were v painful on my throat. I am using E45 on my throat which is v soothing. I haven’t actually tried the Flamazine yet because l don’t like the sound of the side effects & tbh, the instructions contradict what the Nurse told me about it. Has anyone used it? I am still eating a few solid things with liquid high protein supplements which is manageable. This is a v difficult road to travel but l do feel it is manageable; the helpful tips on here ef. About Xylimelts, liquid paracetamol etc, helped me pre-empt a few things for which l am eternally grateful!
