Hello - just waiting for radiotherapy after surgery

Former Member
Former Member
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Hi Everyone 

I recently had surgery for cancer in my mouth at GUYS Hospital in November last year, just waiting to start radiotherapy at the end of January at the Marsden. 

it’s been a bit of a journey and I have had a huge amount of change to deal with. Struggled to look at my face in a mirror after surgery and still find it hard. 

it would be great to chat to others who have gone through this as well. 

taking each day as it comes, staying positive the best I can 

thanks for reading 

Perry 

  • Hi Perry and welcome. This sort of surgery is always difficult but it’s amazing how the body heals. Radiotherapy is a challenge but there are a heck of a lot of us who have survived and are well. 
    Stick around there’s lots of support and helpful tips as your treatment progresses. 
    Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Perry. Welcome to our  group sorry you’ve found yourself here. I had 35 radiotherapy sessions snd 2 chemotherapy it’s not easy but if I can do it anyone can. Any questions pop on here one of us will always try to help. 
    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Former Member
    Former Member in reply to Beesuit

    Thank you for the warm welcome - I getting through and trying to live in the day. 

    Feeling anxious about radiotherapy but I know I will get through it. 

    Take care 

    Perry 

  • Former Member
    Former Member in reply to RadioactiveRaz

    Thank you for the warm welcome 

    Feeling anxious about radiotherapy but will get through it 

    Take care 

    Perry 

  • Hi there Perry; not an easy road ahead for you but plenty of us here have come out the other side, actually eight years ago today I'd just finished my first week!

    Plenty of good folks on here, between us we've probably come across every issue you're likely to face so ask anything, this place certainly played a big part in getting me through.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Perry - hi and welcome.  Sometimes it does take a lot of time to adjust to the new you.  You're sort of half way through  treatment with some tough times to come, BUT almost everyone eventually comes out of this experience with positives.   It is good to take each day as it comes, but I am sure you have some goals you want to attain with your family and friends.  Maybe set your sights on that end goal, but realise that for every 2 steps towards it there will be the occasion step backwards - and that is where we are here to help.  Stay with us as there is vast experience on here to help you.

    Peter
    See my profile for more details of my convoluted journey
  • Former Member
    Former Member in reply to MikeO

    Thank you for the encouragement Grinning

  • Former Member
    Former Member in reply to PFJTHS

    Thank you for your advice Peter Grinning

  • Hi Perry

    Welcome to the forum. Sorry to read you have had quite a journey and a huge amount of change to deal with. I had my surgery back in 2009 which left me looking different to how I used to look and I had a lot of new things to come to terms with. I struggled  with how I looked too and  some other things. I think it was a normal response, as I had such a lot to get used to.

    As time passed swellings went down and scars healed and things improved for me.  I started to feel a lot better. I got used to the new me and adapted to my challenges.

    It is good to connect with others who go through similar experiences to us. Through this we can share tips which help us through.

    The people here are friendly and will help with any questions if they can.

    Best wishes 

    Nicky