Waiting for treatment.

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I have been diagnosed with throat/neck cancer. I have been told it's treatable. I'm waiting for an MRI a meeting with my specialist and then hopefully treatment. At the moment I am so scared. I suffer with anxiety anyway and have been on medication for several years. I just want to sleep. I drink to cope which is not great but I don't know how else to cope. I can't sleep (even though that's all I want), I can't eat. I feel sick and scared. I called the local mental health line but the person I spoke to sounded more in need of help than me. I just want to talk to people who may understand how I feel; who've either been through what I'm going through or are having a similar experience. I know I should be thankful to be told the things I've been told but I can't rationalise and always think the worst.

  • Not a good day today. Does it get better. Do you stop being scared. Do you start to enjoy life again. I'm so up and down I hate it.

    RichyDee

  • Hi Richy. That’s nearly week two done. I’m afraid it will get a heck of a lot worse befire it gets better but the end result is that you will be cancer free and cured. 
    Stick with it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Not physically, I feel fine. I can't stop worrying. I worry about worrying. Do you get over that. Do you start to enjoy things again?

    RichyDee

  • Yes you do. But it takes a heck of a long time before you trust your body. My oncologist and I chatted once about this. After treatment you worry till your PET at 16 weeks. Some worry more than others. It’s out of our control though but the anxiety lessens with time. At first every twinge is cancer but honest it does get better. He said I’d just have to live with it but that’s a clinician talking. We don’t have to live with it. We can seek help. Covid has put much of that out of reach but covid won’t last forever. 
    Trust me. They wouldn’t be wasting expensive treatment and denying somebody else life saving treatment if they didn’t think they could fix you. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Richy take solace from us on here. We’ve been there done it got the t shirt so to speak. I’m one of the extremely lucky ones as I’ve said before I’m a glass half full person. But I’m still sticking around on here just to show people whose in treatment or recovery that it’s worth doing . I have my check ups then carry on living. Our mottos always been one life live it. My hubby had a dangerous occupation he was  a coal miner almost 40 years we retired I got cancer   Not the best start to retirement  but hey look at me now riding my bike walking living .

    We are all here for you don’t be scared  our cancers are curable we are the lucky ones remember that.

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Richy,

    Absolutely you start to enjoy life again. Yesterday I tucked in with gusto to my Christmas Dinner at school, wasn't amazing but felt like a massive step as I polished it all off! Year ago today since I was trapsing around New Cross for the 1st time having scans and biopsies.

    Grandma time last weekend and feeling festive. The hell you are going through leads to a new, happier perspective on life. Stuff that used to bother me just washes off. 

    Hang in there and we are all here rooting fir you! 

    Gill

  • Hi Richy. End of week 2 how are you feeling?

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Struggling. Not physically but mentally. I'm struggling to believe this will work out. Christmas is everywhere just reminding me how unhappy I am. I bet you're fed up of my moaning and my ups and downs but I just feel at times like my life is over.

    RichyDee

  • Have you explored the possibility of taking antidepressants? Are you telling your radiographers how you are feeling? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Richy, 

    It is hard but you are 1/3 through treatment. I remember posting that milestone on my Instagram. This time next week you will be half way through, with less days left than you have completed. 

    All the Christmas reminders are rubbish. The news is full of people moaning because they can't party or go skiing in France, and you are going through this. Christmas last year was the pits, got my diagnosis Christmas Eve. 

    You have lots of life left to live. Plenty of evidence of that on here. As Dani has said, speak to the team, or your GP, see how they can help. You should be having a weekly clinic with Sarah or Carol, they will be able to try and help if you tell them how you feel. 

    Gill