Waiting for treatment.

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I have been diagnosed with throat/neck cancer. I have been told it's treatable. I'm waiting for an MRI a meeting with my specialist and then hopefully treatment. At the moment I am so scared. I suffer with anxiety anyway and have been on medication for several years. I just want to sleep. I drink to cope which is not great but I don't know how else to cope. I can't sleep (even though that's all I want), I can't eat. I feel sick and scared. I called the local mental health line but the person I spoke to sounded more in need of help than me. I just want to talk to people who may understand how I feel; who've either been through what I'm going through or are having a similar experience. I know I should be thankful to be told the things I've been told but I can't rationalise and always think the worst.

  • Imagine hanging that thing on your wall. An Everton top.

    Maybe I'll see it differently when it's all done and I can look back on this with some relief, rather than at the moment as the most anxiety inducing experience of my life. Eating is still tough. I've had 4 fortisips so far and two glasses of full fat milk. I presume I'll be told if my weight starts to drop but I am necking the fortisips. If I have six of those and three glasses of full fat milk, I would imagine that's quite a lot of colories.

    Anyway, they didn't do my bloods correctly on Friday so I had to go in to have those done today too so my chemo can go ahead as scheduled tomorrow. What a palaver. I promise that when this is done and I get my all clear I am going to live a healthier lifestyle so I don't have to go through this again.

    RichyDee

  • Imagine hanging that thing on your wall. An Everton top.

    Sense of humour still active I see!

    Yeah it's a tough job but somebody has to do it.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Imagine hanging that thing on your wall. An Everton top.

    Husbands oldest granddaughter at 12 years old plays for Everton Slight smile

    If I have six of those and three glasses of full fat milk, I would imagine that's quite a lot of colories.

    Brilliant .....you'll be hitting 3K well done

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Husbands oldest granddaughter at 12 years old plays for Everton

    Well done her, women's game going really strong at the moment, it's great to see and Everton have been one of the trailblazers. Wish her much success and fun.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Thankyou Mike. It is great to see the women's game get recognition. Her mum retired this year at 40 from St Helens Rugby team just as they won the Championship and the Challenge cup

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Well done Thumbsup keep it up xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Richy. Good luck with today’s chemo. Remember to tell your team any issues. 
    Hope you’ve got your ear buds today?
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Another chemo done. Third of the way through that. Long day but I did have my earbuds but mainly just listened to the sound of a blizzard on a weather sounds app. I find that quite calming and better than Free Radio which they have on in the room. It also seems to block out many other sounds too and I think I may even have fallen asleep (briefly) at one point. 7th radiotherapy done too. 2 out of 6 chemo and 7 out of 30 radiotherapy; all done. I said to the the chemo nurse I don't ever want to come back after the treatment is done and she said that this treatment is intense but very effective and seemed to agree I'd get my wish. Still struggling to believe anyone or accept this is real but hopefully it will all sink in some day soon and I'll start to become more confident about the future and get my life back.

    RichyDee

  • Hi Richy. One day you’ll realise what we are all saying to you. The treatments is intense the end results are excellent.i am now 40 month  on or  3 years and 4 month post radiotherapy and looking forward to my 3rd.  Christmas since treatment finished ! Many on here are further in than me. Remember take the medication and by end of next week you might find you need stronger  pain killers with Christmas coming up just forewarning yiu to speak with team. There’s nothing worse than 8 pm on a Friday night being in pain and can’t do anything until Monday never mind Christmas time. You’re getting there slowly 

    Glad ear bufs   are helping. Although doubt I could listen to a blizzard for hours !!!

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Still struggling to believe anyone or accept this is real but hopefully it will all sink in some day soon and I'll start to become more confident about the future and get my life back.

    Well I must say there isn’t the intensity and urgency in your posts any more and you ARE sounding more upbeat. Slowly slowly catchy monkey.  Xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge