Hi
My husband has just been diagnosed with squamous cell carcinoma in lower jaw after biopsy and debride of socket.
He has had CT scan and is having MRI tomorrow. Appointment with consultant Monday.
Just reaching out to hear others’experiences.
Sue.
Hi Sue. Welcome to our little community. Sorry to hear about your husband.
Is your husband’s sarcoma a bone cancer or a soft tissue cancer invading the bone. Sarcomas behave differently to the carcinomas most of us get here and it might be useful to post in those groups too, but do stay with us
Nevertheless there are quite a few members here who have had a mandibulectomy with reconstruction quite successfully. Hopefully somebody will pop in to share their experiences
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Ok don’t worry. I was just trying to get you to the best place which is actually here.
They are cracking on and Monday will give you the start of plan.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Sue,
So sorry to hear about your husband's recent diagnosis. At the end of May I had surgery to remove oral SCC which had spread to my left lower jaw. The mandibulectomy involved a bone graft from my right fibula for reconstruction and I also had a neck dissection. I spent 3 weeks in hospital and am now recovering at home, slowly but steadily. I'm still on a pureed diet. Face, mouth and neck still swollen, and my speech is a little slurred but improving each week. I'm still hobbling on my crutches but there's light at the end of the tunnel.
Happy to share and answer any questions about my journey. This is a great online community where you'll find plenty of support from people who can empathise having gone through similar experiences.
Sending best wishes to you and your husband,
ElizaR
Hi Welcome from me. SueinKent has given you a great response. We’re a small friendly group always happy to help. I had scc hpv driven tonsil cancer which was cured by chemo and radiotherapy.
always happy to help
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel. I shall certainly give your blog a perusal. And the videos.Thanks so much.
Hi Sue. So sorry to hear of your diagnosis. You will get lots of support here from people who have experienced something similar. I had a right mandibulectomy, neck dissection and radiotherapy for cancer in my right lower jaw in 2013 when I was 59.I was lucky as I did not need a reconstruction. I was well enough to go back to work 8 weeks after the op before the radiotherapy. Had to have more time off during radiotherapy but got back to work eventually and kept going until I retired when I was 65.
I got back to eating fairly normally and doing all the things I used to do before.
It is a scary time but once things get into motion with your medical team it becomes easier.
Sending you my very best wishes.
Lyn
Sophie66
Hi again Sue. Sorry I didn't read your initial post properly. It is your husband with the diagnosis and not you. You will be a great support to him he is lucky to have you. It is a trying time and I found my husband's support invaluable.
Lyn
Sophie66
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