Waiting for treatment.

Woohoo!  That's great to hear Ronnie.

Linda x

I'm glad all was OK. It doesn't sound too daunting. How long do they leave the PEG in then. I imagine it differs but I really want this gone; although I appreciate in a few weeks I may be glad of it. Do they do a scan on the first check up after 3 months.

Ronnie95 said:

Today he said I can go 2 months until next appointment,  but if anything worries me call them up and they will see me. Some of that might sound grim, but after the past year it just feels routine. Today was my 5th once since treatment ended.

That’s wonderful news Ronnie. It’s great to be able to stretch those appointments out. As you point out the checks are thorough and reassuring. 

PEG stays in until they're satisfied you can get enough calories in orally so it varies from person to person, but probably a couple of months is average. They don't do a scan in the early stages because tissue is still swollen by the RT so they wouldn't be able to see anything, I'd say three months down the line is about right.

MikeO said:

They don't do a scan in the early stages because tissue is still swollen by the RT so they wouldn't be able to see anything, I'd say three months down the line is about right.

I think a lot of trusts are now doing them at 16 weeks because of this. 

Hi Richy   My trust didn’t scan until

16 weeks I had Christmas at week 16 so I was nearer to 18 weeks when I was scanned. I was fine with that as Dani says it’s becoming more common. Our throats mouths take a battering so it takes time to heal. Your peg will be removed when you can proof to the dietitian s you can maintain a healthy weight. Best advise don’t thjnk too far ahead. 
Another day nearer  to treatment starting. 
Hazel 

Hi Richy. I’m the opposite check  ups never worried me neither did the scan. I had faith in my treatment and team. I’m lucky in that respect once I had treatment plan in place I put my head in gear and got on with it. After the first year reoccurrence s are highly unlikely to happen so again don’t stress about things you can’t control. Take it all one day at a time. The check ups are for your own good  remember that.  You’ll get into a routine for everythjng. 
I’m now 3 years so every 6 months for me. 
Hazel x

Thanks. I felt the same about peg. They reviewed at 6 weeks, then again 12. Between those two I lost too much weight as I came back off the PEG, so they wouldn't book removal until next appointment and weight stabilised. So, pretty much as Mike says in terms of enough calories.

After my 12 week clinic they booked my PETCT, so that was about 13 weeks after treatment finished, but I had to wait  until next clinic for results. I imagine it will be same pattern for you, depending on how it all goes. 

Thanks Dani. 

Thanks Libda x