Waiting for treatment.

Former Member
Former Member
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I have been diagnosed with throat/neck cancer. I have been told it's treatable. I'm waiting for an MRI a meeting with my specialist and then hopefully treatment. At the moment I am so scared. I suffer with anxiety anyway and have been on medication for several years. I just want to sleep. I drink to cope which is not great but I don't know how else to cope. I can't sleep (even though that's all I want), I can't eat. I feel sick and scared. I called the local mental health line but the person I spoke to sounded more in need of help than me. I just want to talk to people who may understand how I feel; who've either been through what I'm going through or are having a similar experience. I know I should be thankful to be told the things I've been told but I can't rationalise and always think the worst.

  • Good point ask for eyes cut out I did snd then if you’re nosey like me you can watch the machine whirl round. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • It will be every 6-8 weeks in year 1 and depending on how the feel you are getting on it will slowly get less frequent from years 2 to 5.  Whatever you do don't stop going for the checks.  Although the risk of return is low catching anything early is far better for you.

    It's great news about your teeth.  Remember to look after them really well as the treatment will reduce you body's natural defence for your teeth.  The hospital dentist will advise.  I'd also let your local dentist know now so you can get in for those vital checks without delay.  Alas you still have to pay normal dental charges for them.  Mine actually got me as soon as I was diagnosed so he could do his own baseline to work from.

    Good luck and glad things are moving forwards.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Richy. Everybody else has roughly outlined similar protocols. PET/CT at 12-20 weeks post Tx

    My RT finished January 23rd and I’ll be three years in front of you. I was at my oncologists yesterday to check an anomaly that had come up. They do look after you. The last year has been an absolutely marvellous one. I am feeling bloody good and almost back to normal in body and head. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to PFJTHS

    Went to the dentist who said they'd spotted another filling and wouldn't have time to do it today so I'm booked in for tomorrow. £95 a filling plus an x-ray for a tenner. Should've been a dentist. Unfortunately terrible at science. Anyway as long as it's done, means everything can keep moving. Thanks for all the info regarding check ups.

  • Former Member
    Former Member in reply to Beesuit

    Hope everything's OK regarding the anomaly you mentioned. And I hope that I'll get to where you are with how you feel and enjoy life. At the moment I'm not really having much fun.

  • Good to get your teeth sorted before treatment starts so that was lucky even if it has left your pockets lighter!

    Linda x

  • Former Member
    Former Member in reply to LindaWT

    It did feel like being robbed. The only thing missing was no one pulled a gun on me.

  • Hope everything's OK regarding the anomaly you mentioned. And I hope that I'll get to where you are with how you feel and enjoy life. At the moment I'm not really having much fun.

    Thanks Richy. I noticed a lump that I diagnosed as a mucous cyst but you can never be too careful. Doctor agreed with me. You will get there. I wrote that not to make you feel inadequate but to let you know that we get cured and life goes on. I didn't want cancer but I'm not sorry I got it. It's changed me and given me a direction that I might not have discovered otherwise.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    Pleased you're OK. I hope I think like that. I'm trying to write down my experience at the moment. I thought like you it may be therapeutic and allow me to put stuff in perspective. What we're going through all this crap for. Here's a pic of what matters most to me. It's an oldish pic as my boy is 16 now but I do love this picture so much. I fact I had it made into a 1000 piece jigsaw for my wife a few years back.

  • Oh Richy they are both so beautiful. There are different sorts of luck You are a lucky man. There are so many more important things  than cancer. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge