Diagnosed today

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Hello

Today I was told I had cancer in my lymph node, and this is head  and neck cancer. I am terrified. I am waiting for a date for a MRI and PET scan, so don’t know what type of cancer I have. 

  • Hi Dani

    I am one week after my operation, and hell am I in pain. I didn’t want to take the morphine but I’ve no choice. Forcing myself to eat things like cornflakes too scrape my tonsils, but it’s hard going. How long does this pain last :( waitning for my results from the lab to see what treatment I am going to need. Your advice is right do  not google . Listen to people on here x 

  • Oh poor Debbie. Tonsillectomy pain is the pits in adults. I think another week will see you much improved. Just take the pain killers.....that's what they are for. Paracetamol is much maligned but it works well. Take that in between your morphine doses. Or you could ask your GP for prescription only cocodomol.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Debbie,

    I'm no medical expert but if you follow similar pattern as I did in Jan then you're around peak pain now and it will drop off in next few days. I chewed down some crushed ice before eating at this stage  helped a lot. Meant I could manage toast and cereals to help clear the healing away. 

    Take care, Ronnie 

  • Hi Ronnie

    I will try that, anything that works I will try

    so glad I have everyone on here to pass on their experiences x

  • Debbie, 

    Just remembered they also gave me Difflam spray. Have you got that? Brought some relief in between other meds and after eating. 

  • Oxetacain also, for eating. Worth its weight….

  • Hi Debbie

    As others have said and some of us know - it hurts!  It is probably the scabs, from where they removed the tonsils, starting to detach.  I promise you that by day 10 it will get better and probably by day 14 you will be wondering what all the fuss was about.  Just start a countdown chart and you'll soon be there and fit for any further treatment you may need.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Debbie as everyone says take the pain killer. Keep off cornflakes too scratchy. You can try soluble aspirin for gargling then spit out it csn give some in between relief. Try kids ice pops . Smoothies with added protein powder if you’re loosing weight csn help make with crushed ice as well. I was prescribed codeine.

    It will ease. Keep us in loop when you get your results. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Former Member
    Former Member in reply to Beesuit

    I tryyyyyy not to google. ha. Yes, USA. My dentist just offered to do a free pano to check for abscesses.