Scared to death !!!

Oh bless you yes it’s very frightening , but I’m nearly 2 years in now and alls not to bad , kept talking and take any support you can , McMillan have helped me do much , sending you lots of love ️ 

Hi, I was also diagnosed recently with a tonsil cancer which has spread to a lymph node, HPV related T3 N2a they say. Hope to start radiotherapy and chemotherapy in early June. Really scared by the side effects I have been told about by the oncologist but increasingly reassured by reading about other people's experiences here and elsewhere and how they managed to get through it.

Thank You

CookieD

Hi cookie 

yes the side effects are significant but they don’t all come at once and are manageable. Lots of us here have survived and thrived. I am 2 + years out of treatment and in remission living well and almost the same as I ever was. 
Pop on as and when you need some help. There’s usually somebody around. 
First stay off Google. Second manage the pain before  it becomes a problem. We have a pharmacopoeia of drugs available to us. 
Best wishes. 

Hi my lovely it’s all very scary but hold on tight and take all the support you can , 2 years in and I’m not doing to bad , I’m a lupus and coeliac so there’s have just added to my recovery , but cancer gone and still that way now , sending hugs x

Hi CookieD welcome to the club that none of us wanted to join. I was T2N2n m  h p v 16  positive spread to several lymph nodes by time   treatment had started .Nit everyone gets the same side effects as Dani has if the  key is to keep on top of pain relief do it by rote it’s not an easy time but if I can do it anyone can I am almost 3 years post treatment niw and living my life to the max. 

any questions pop on someone’s always will get back to you. 

Best wishes Haze 

JMango

I know how you feel. I am 9 wks done treatment & surgery, diagnosed Nov. The treatment is tough but not as tough as you think. You’ll get through it, I was the most anxious, worried guy, with young kids, etc but I got through. Believe in yourself. You will get there & will be a stronger person for it.

Steve

CookieD

Pretty similar to me. I had no chemo side effects at all. RT was ok for 4 wks, sure you don’t eat as well but you manage. Ended up as inpatient for a while at the end of RT for a feeding tube (don’t be scared by this, it sounds worse than it is - it was the best thing really). Use what pain relief they give you & you’ll do ok, you’ll surprise yourself. 

Take care, everyone is pulling for you. 

Steve

1. larnaliss

I am 9 wks post treatment, I know your world seems wrecked but it’s not, more & more people survive & thrive. The waiting to start the process is so tough but when you start, you’ll do ok. It’s the loss of control which is hard. Don’t be too hard on yourself, your job for the next year is to follow the advice, treat your food as fuel, recover, rehab & rest. There is still a huge life to lead.

look forward to hearing how you get on. 

Steve

Thanks Steve C38. Having PEG fitted tomorrow and start treatment Wednesday. I am dreading it but I know that in 2 months time it'll be finished. I know they'll be side effects but if I'm still here for my kids, I can take that. 

Hi Steve, thank you very much for your reassuring  and encouraging message. It is so kind of you to respond like this.

The oncologist gave me chapter and verse on the scary side effects but I think they are obliged to do that. It is worrying but people seem to get through it and to thrive afterwards.

Hope you are ok.

Best wishes

CookieD