I am a newby on here! I was diagnosed with Oropharyngeal cancer Nov 11th. No need to delve into all the stuff thats happened since then, as i am sure you have all been thru it too! I had test for HPV came back negative. Thru more testing, it appears, that mine was caused by a viral chest infection that i had 2 years ago. Extremely bad cough and had inhalers etc, got better but cough remained, had antibiotics cough cleared up but then came back. I gave up smoking over 20years ago. I was told that the cell structure that was altered during my smoking years, had gathered in my tonsil tissue and lain dormsnt all this time, waiting for a trigger... my chest/bronchitis was the trigger!!! So... here i am today!! This werk I go for my nxt lot of pre op checks and then the neck dissection plus laser inside for the tumour removal plus part of tongue, wont be long after.
Extremely nervous, scared and hopeful as we all must be.
I call it my ROAD TRIP with THING!!
I hope you all have successful treatment snd all the discomfort and scary stuff will pay off! Xx
Heard it called many things but "ROAD TRIP with THING!!" is right up there with the best of them (mine was "Me vs The Marmite Jar" which will make sense if you're ever bored enough to read my blog, linked below), welcome although sorry you find yourself here.
It can be a bumpy road and "THING" can be really quite a bit thing with spikes on at times as well but there are loads of us on here coasting serenely down country lanes having got round the M25 in rush hour to show it's achievable (am I dragging the analogy out a bit now? Probably).
Anyway, sounds like you have a good attitude and a sense of humour which will help. My wife actually used to get cross with me for keeping good humoured whenever I could because she saw no humour in what was happening but we all deal with it the best way we can.
Think of this site as your breakdown cover; we might not be able to fix you at the side of the road but we'll be able to advise you where to go to get moving again. Safe trip!
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hi...
I do have a sense of humor! Its helping me or seems to be. I have FB timeline and posting my ROAD TRIP news as a bloggy log type where a lot of people are following. We are on the bus together and the road will be bumpy with a few sharp corners, but we are stayingvon the bus until we all ring the bell at the end! A few have their own THINGS to deal with in different places, but at the end of the day, its a similar journey. Yes, i do have the lethargu, i do feel discomfort and tes, my left ear is being ripped off at times , but THING will be evicted off the bus soon for fare dodging!!!
Here is THING 
here is the bus here is the bell 
Good thoughts to you and thank you for reply.
Love your name!! I stay positive, even in low days, i try to remain happy and think of things i will be doing in a few months.. i have a static caravan i need to get ready for 2020 season, my husband has early on set of memory loss plus his 70th birthday in August and i would so much love to take him on a few days holiday.
THING is sometimes painful and yes, i do get tired, but we have to keep going. No one wants to make friends like this, but i think it may change some of us as people and make us appreciate life and what we have more than we have done.
My bloggy loggy is on my FB timeline, a womans magazine approached me after a friend told them about me and ROAD TRIP with THING , they asked me to type it all up and send it to them when its over, whenever that may be. I will think about it.
I am sure i shall name whatever attachments i find myself with during this journey. It does help to make it kess sterile!
I wish you well, and hopeful for the future.
Take great care , yes , stay in touch .
Lisa
One day after her op Annie posted graphic pictures from her hospital bed. Brave lady, she looks pretty good considering what’s been done.
Just thought I’d let you know.
Good news about your husband’s change of plan. Retromolar tumours are more difficult to deal with. Good luck and fingers crossed for you both.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
