Hello all!
I hope I've found the right place to air mums laundry with like minded people.
Mum is 66 years old and has been through the mill, 5 years ago lung cancer, 3 years ago breast cancer and now SSC has reared its ugly head.
She's had a bad throat, difficulties swallowing and went to GP in January. She goes to all appointments with her husband. I think she hears what's been told to her but doesn't really listen and take it in.
Being her 3rd cancer, I think she turns up to appointments/scans etc as she knows its path of the course and is just focusing on being compliant. Words fly round the room but she's not wanting to take it in. Just attend, phone calls, tests.
She's had biopsies/ needle guided biopsies and biopsies under anaesthetic. MRI, CT, Xray and PET scans. She's had a tooth removed last Friday and another 2 this week.
She says the tumour is at the base of her tongue and/or tonsil. It's got to be treated with radiotherapy and chemotherapy. 30 sessions radio/6 Chemo. It is SSC, the exact same cancer we lost her brother to before he reached 40 years old. She's also needing another biopsy to the parotid gland.
I'm not sure why I'm waiting this but just need to vent I suppose.
Wishing you all the best x
Mum is still young and stands a very good chance of being cured by the challenging treatment... your mum has been through the mill already so that alone should stand her in good stead for the challenges ahead....
Good luck... keep posting ...plenty of support and sound advice on the forum from others who have been in the same situation.
Michael
Oh your poor mum and poor you. You’re caught up with this and feeling helpless
I was 68 when I was treated for base of tongue cancer and I’m 7 years clear now. The treatment is pretty pants but it works and we get through it.
I don’t know how your mum reacted to the previous treatment but this will be hard and she will need a fair bit of support.
Stay with us. We will help as much as we can.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thankyou so much! I just want to take it all away from her.
The treatment will be quite hard but it does not last forever... I'm just back from the Canary Islands... have been a few times since my treatment finished... life normalises... just takes a little time.
Michael
Previous treatments seem a piece of cake compared to this scenario. It's so daunting. So many questions.
She reacted amazingly to the immunotherapy for the lung cancer. Although still medically referred to as terminal but the tumors are dormant...for now.
The breast cancer was resolved by surgery. Box ticked.
This one seems like the big boss at the end of a computer game. She's hates small spaces, even the MRI so I know the mask alone is going to make her feel panicky. Let alone all the other side effects.
Im scared for her but can't show her that. I'm also 100 miles away. When is she going to need me the most? My issues of work and family seem so petty and selfish to worry about but I need to be there when she needs me the most.
Sorry, just emotional
That's reassuring so hear! We've had to cancel our holiday in May. It's a shame as it was to celebrate her being the all clear at the end of last year
Sorry, just emotional
Heavens, don’t apologise. The last two weeks and two weeks after treatment end are the worst but you know we get through it day by day. We do get better
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I got the all clear from colorectal cancer 2 months before being diagnosed with head and neck cancer... pretty much floored me... but we are survivors...we soldier on...6 monthly review yesterday and the oncology team were happy...so off we went for an Indian curry lunch.
Michael
You're definitely the light I need today! You really are amazing!
Just one of many glimmers of light ...every patient, carer, loved one etc. on this forum has been amazing...all are stars... great sources of advice and support.
Michael
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007