Hi again all, My husband will be undergoing 35 rounds(?) of radiotherapy for T4 N2b M0 base of the tongue cancer. Regards radiotherapy - what do you know now that you wish you knew then? e.g I hadn’t realised radiation can/will burn the skin on...
We get a lot of questions about PBRT. The Christie is running an afternoon Zoom session tomorrow if anybody is interested. I’m going to pop in and have a look. You have to get a free ticket via Eventbrite. www.christie.nhs.uk/.../proton-beam-therapy-consumer...
Hubby has had first course of immunotherapy and has developed anxiety and panic attacks (now on meds to help) has anyone else experienced this or is it more likely to be his new diagnosis (cancer now at base of skull previously tonsil area which is apparently...
Hi all, My RIG tube fell out today! I was just about to be 100% tube fed for nutrition and hydration. So that sucks... I have been admitted and currently waiting (and waiting...) for IV fluids. The balloon inflation valve on the RIG failed and...
Hi, I finished radiotherapy mid March and had the usual side effects - mouth sores, swallowing issues, loss of taste and fatigue. Out of the blue last week I started with double vision and have wear an eye patch as I can’t move around otherwise. I’m...
It's great to read everyone's comments on this forum. So much great advice. I'm nervous as I'm just about to start my treatment plan with an operation to remove my nose. Still sounds incredible to say that out loud. But I know it's the right thing to...
Hi all I am now entering 6th week post treatment . Using peg to get calories in but being chastised by speech therapist to use my throat by eating small bit . No pain with the throat and for the last week managing few mouthfuls of toast washed down or...
Hi my husband underwent extensive surgery last week for tonsil cancer with tonsil tissue lasered, and lymph nodes where it had spread to taken out by neck dissection , does this mean it will eventually spread through rest of his body as we don' t know...
I have started to use my rug tube for over a week now and have barely no taste in my mouth. cannot taste anything and am so anxious and worried will I be able to taste again ? how long will I need to use my rig tube for ? mum mouth is all white and I...
Hi, We are waiting to find out if partner will need radiotherapy to treat tongue cancer. I'm a bit worried about this affecting his swallowing and eating, as he really didn't get on with NG tubes in hospital (vomited three) so if he needs one it could...
