Hi all,
My RIG tube fell out today!
I was just about to be 100% tube fed for nutrition and hydration. So that sucks...
I have been admitted and currently waiting (and waiting...) for IV fluids.
The balloon inflation valve on the RIG failed and the water came out. I was walking out of the hospital and the tube dropped out of my clothes.
So, I currently have a nasogastric tube keeping the hole open and will be going to xray tomorrow to try and replace it.
Could really do without this as I am in Week 4, really starting to feel the side effects and I have a blood clot (see my recent post).
So hungry and thirsty
Rant over...
Steve
Oh dear Steve. Can they fit a n g tube if the rig can’t be replaced I managed 3 weeks pre snd 3 weeks post with the nasal tube. All hydration nutrition and meds went in that way. Make sure someone ensures you get something inside you tonight. Keep on top of pain meds. Especially if you’re on oramorph or cocodomol you don’t want cold Turkey on top of everything else. Rant anytime.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks, Hazel.
I guess NG tube is possible, but, if they can't simply put a new RIG through the hole, I think they would try another RIG (using a NG to guide).
I want to go home (first night ever in hospital).
Steve
Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0
Tomorrow I reckon. Just hang on in there before you know it you’ll be ringing the bell and hunkering down in recovery. w badgering thrm fir hydration you need it Remind them uou are in the middle of radiotherapy.
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Oooh sorry to hear this SteveyN, I hope they get you sorted soon.
I'm having a RIG fitted next week, so as you do.. !! i've been looking up about them. I understand that if it does come out, they can put another in the same sight.
Hope you've had a comfotable night.
Cat x
Thanks, Cat.
They have managed to fit a new one in the same hole, but it wasn't a certainty...
I should say that dramatic balloon deflations are rare. Most of the health team had never seen it happen before.
I ended up in hospital for 24 hours, unable to feed or drink, with just a glucose IV drip.
The thin NG tube that a junior dr put in the hole had managed to keep it from closing up. I am grateful to him.
It was not a simple reinsertion. They have to be sure it has gone right into stomach. It needs a full surgical team and live xray (same as original fitting). So, I had to wait for a surgical slot, yesterday afternoon. They warned me that it they couldn't get it to go in, then I was looking at an NG for a few days and new procedure to fit a RIG through a new hole. Relieved that this wasn't necessary!
Hopefully, sorted now!
Steve
Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0
Hi Steve
I pulled mine out while drawing the water out of the balloon.
My wife inserted the plug that had been supplied to me and phoned the Abbot nurse. Who arrived at our house about an hour later and fitted a new rig.
Very impressed with the Abbot team
Michael
Stay strong
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