Cancelled surgery Parotid salivary duct cancer blood clotting issue.

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An update on my cancelled operation as you may be already aware my surgery planned to remove my parotid salivary duct and neck resection for November 3rd got cancelled because my blood didn’t clot properly, they continued to take more blood in the course of the day while I was waiting to go to theatre but each result was worse due to my clotting factor. The surgeon came in the room and said due to my blood not clotting it’s too dangerous to go ahead with the surgery. They took a lot more blood and this got sent off to a specialist haematologist centre as they suspect I have Acquired Haemophilia which why they are still looking into.It’s now November 12th and up until yesterday I hadn’t heard a thing but I chased them and they are trying to find out why Haematology is taking so long,  as before they can operate they need to give me an infusion to help the blood clot. I got diagnosed with cancer nearly 3months ago and to date I’ve had no treatment. My cancer in my cheek is growing and I’m worried it might spread to other parts of my body. Also I’m worried that the blood condition may be some form blood cancer. 

kind regards to everyone 

john.

  • Hi John -  that is a tough one for all concerned; you and the clinicians.  I can understand why they want to treat carefully, but that does nothing to ease your anxiety and need to get on with treatment.  Personally I would be on the phone asking for updates on a regular basis, but not so much that they feel you are hassling them.  A fine balance.  Do you have a named CNS who you can contact for the answers - they are normally very good at speaking to the right people to move things along....

    Peter
    See my profile for more details of my convoluted journey
  • Hi Peter,

    Thank you for the reply, I have got CNS who is chasing for me, it’s Haematology that is holding everything up the surgeons won’t operate until they come up with a solution.

    kind regards 

    John

  • Just seen this ...what a blooming carry on ...I hope things get sorted soon and you're operated on.

    Dad's parotid tumour went from a pea sized lump to a visible large growth with lots of pain and his whole cheek swelled with in a few weeks ....

  • Hi 

    My parotid salivary duct tumour is growing rapidly I’m finding it difficult to open my mouth and chew. I hope I hear some news on Monday or Tuesday or I don’t know what I’ll do. As I said it’s been over 3 months since I’ve been diagnosed and I’ve had no treatment.

    kind regards 

    John