Nerve pain shooting from arm to lower head, 2 months post-treatment

I still get periodic peripheral neuropathy in my hands and feet, fibrosis in my neck, cocodamol helps, I was prescribed pregabalin but it caused my dry mouth to worsen ... peripheral neuropathy  has settled down over the years...3 years since my last CRT treatment...

Thank you Michael, I see that you still get it periodically, sorry about that, glad to hear it settled down.  I might try cocodamol then. My mouth is so dry and it seems that Amitriptyline could make it worse as that's one of the side effects. Do you do anything for fibrosis? 

Fibrosis ...I have just been using Phorpain gel 10%.....Naproxen helped but new meds for blood thinning mean the NSAIDS are a no go now...Co-codamol if it gets severe.

Thank you Michael

I’ve had nerve pain (arms and hands) and weakness since end of March. Having nerve conduction scans next week so hopefully get a plan in place. Was on gabapentin but didn’t really help and normal painkillers not much use. Other nerve blockers appear to have too many side effects. 
19 months post high dose cisplatin and 70 gys /35 fractions radiation for tonsil cancer with lymph node involvement. NED , PET scan April. 

Thank you Melbally, I hope you will get a plan in place next week, please if you can, let us know. I had a quiet evening and hoped that it eased but the pain returned at night.

I won’t get my report till beginning of September as consultant is on holiday straight after my scan but will update you then. Hope you are okay in the meantime . (I’m in Ireland , no decent forums our side so joined here)

You had to wait for so long, I don't know how have you been coping since March. 

Originally I was due to get an x ray till my oncology nurse said in April I needed nerve conduction scan. I was referred privately to the private hospital side of the public system as public waiting lists here are unreal. As I was still waiting , I asked for a referral to a private private hospital. I got appointment in 6 weeks so wish I had done sooner. It has been difficult and I can’t drive as my fingers on left hand won’t bend fully and it is sore when I use it. The weakness is the worst as normal everyday items that are light feel too heavy for me. One of my friends got me a special bottle opener thing as I can’t manage jars bottles etc. I’m not sure about in the UK but here there is not enough recorded about neuropathy pain as late onset side effects. Or indeed about any of the chemo radiation side effects when treatment is finished. 

Sorry you have to put up with this, it's so difficult. I don't think there is much here available too, I can hardly expect to be offered any scans. I have been referred to my GP. I will see what they say after they get my blood test results.

I hope you will get a good plan at place to deal with this.