I'm starting my CRT today and feeling quite apprehensive. My mouth does not open wide as it is, due to surgery 6 weeks ago to remove gum, palate, part of my cheek bone and turbinates. I had a free flap reconstruction. I have learned to eat, everything has to be very small to fit into the unaffected area of my mouth. Has anyone been affected by their jaw opening following CRT? Thank you. Bit worried about CRT too.
Hi, I didn't have C, just RT and it's the latter that does the damage. Radiation causes fibrosis (scarring) and can stiffen your jaw. Have you been given any jaw exercises to do? If you haven't then ask to see your Speech and Language Team (SLT) and do them religiously as well as you can...that's all you can do. I did those and swallow exercises all the way through my treatment and beyond. I still do them now seven years on.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I have had a partial mandibulectomy 2013 and radiotherapy and a left maxillectomy 2019 and more radiotherapy and right maxillectomy 2022 with roof of my mouth covered with a graft from my arm. I have limited mouth opening also. I can open it 1 finger wide whereas you are supposed to be able to open it 3 fingers wide. I was given some exercises to do using tongue depressors stacked on top of each other to try and improve my mouth opening. I got so far and then stalled and cannot get my jaw open any wider. However I can still get my mouth open wide enough to get a spoon in and to clean what few teeth I have left. Also able to get my denture in and out O.K. with a bit of a wiggle.
Keep doing your jaw exercises as they certainly do help. You can also get a Therabite but I was told by my surgeon that the tongue depressor exercise works just as well.
Lyn
Sophie66
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