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Hi Db1960, you are still in very early days in your recovery, and this is not unusual. Recovery can take a good while, with ups and downs along the way, sometimes it does seem like one step forward and two back. Your body has a lot of healing to do, which will take time, you will get there, don't worry.

Ray.

Hi DB1960

My husband suffered dreadfully from about 4 weeks post treatment completion till about 16 weeks, when things started very gradually to improve. He still had sores in his mouth until week 24 and was convinced that it was reoccurring. He got an all clear in the middle of July and the sores do sometimes reappear (depends on what he’s eaten I think). He’s now 7 months down the track and feels mostly well. He still gets some mucous and can’t eat spicy food, which he’s looking forward to but other than that he’s doing well.

Hang in there, it should improve with time, treatment is brutal but recovery is torturous.

Take care, Debbie x

1. Good Morning, just as Ray and  Debbie are mentioning, it is very early. These side effects are normal and it does feel like you are going two steps forward and one back. My husband is now approaching 8mths post treatment. And just like Debbie's hubby, he still can't spicy food and the mucus is still giving him some trouble. But so far so good. So be patient and persevere it will get better. Hugs  fellow wife. Mel.

Db1960 said:

The oncologist says that because I received an abbreviated treatment (5 weeks, 6 times a week Monday to Friday) this probably contributed to it. 

I think this must have a lot to do with it. The damage to surrounding tissue would have initially been quite nasty and you do get a rebound effect sometimes, even with "normal" RT

Just Plod on. Keep a diary and look back every couple of weeks. You'll soon see how much progress you are making.

Hi DB,

I finished my treatment at the end of Jan 25, and after 2 months felt well enough to return to work, part time, 3 days a week. After a couple of weeks work I then had a similar set back which had me really worried and anxious that things had gone wrong.

Chats with my McMillan nurses and speech therapy team at that time, convinced me that these set-backs can happen if you catch a cold or over exert because you think you're better, and that things should resolve themselves with rest and time, which they did.

And this happened again for me more recently (6 months post treatment) and again I put this down to felling unwell and over exertion.

I suspect that we will now be susceptible to these set-back from time-to-time, due to the nature of the treatment we have been through, and for me, now knowing that they should pass, and knowing I am being seen by some fantastic specialists every six weeks during the first year post treatment, I am much less worried when this happens than I was, like you, the first time I had a set back.

MickyC