Larynx, thyroid cartilage, voice question

Hi wildflower. 
I wouldn’t accept being left in limbo. You are still under the care of your thyroid surgeon so I would contact your CNS to get you seen again by your surgeon by-passing what arrangements have already been made and what the GP is doing. 
I have a lesion on my thyroid cartilage which has been there for years and the guess is it’s a chondroma. It’s causing no symptoms. 

Hi Wildflower,  I back up what Dani has said contact the cancer nurses or whoever is the department for an urgent discussion, I had a Larygectomy 5 years ago my voice was extremely hoarse so the cancer stage 4 was in my Larynx, it had started to spread to my Thyroid gland and I have only just discovered that they actually removed half of the thyroid, to that end have you had blood tests for Thyroid functions I have had a couple and about to have another, my second cancer was oesophagus and the chemo I think has affected the function as I have continuous hot spells from my neck up

Anyway everything will possibly be OK but do chase the Cancer Team direct and not the GP

Take care , Tony

Hi Dani @Beesuit and Tony Kasvin ,

Thank you for your very fast replies! I forgot to mention the NHS chaos around my case but will try to keep it short.

My local hospital used a company of ENT surgeons that seems to place surgeons for very short periods….maybe a year but not much more….who then rotate across all the hospitals in the south east and London. My surgeon left the day I got my results and the follow up hasn’t been arranged based on the all the necessary information or even experienced staff. So in short there is no one to contact.

Additionally the hospital is known as the local death trap and is in the news today after being downgraded by the QCC. Former staff also say that it’s not a well run ENT department and in general the hospital has huge problems not relayed in the news. In my case one consultant suggested that I was feigning thyroid problems to get a prescription exemption certificate and then scheduled by a different consultant for cancer surgery 48 hours later?!

Because of the private ultrasound that showed the larynx change I had a new urgent referral to a different hospital that handles regional complex surgeries. They are the ones who have downgraded and nearly discharged automatically. I have a scan next week but no biopsy of my thyroid or larynx but it’s highly likely they will automatically discharge despite my remaining thyroid nodules having grown twice the size as the one removed by surgery. I know from a second private scan that the spot on my larynx has increased slightly but is much more vascularised so it’s not promising.

I did speak to the head & neck cancer nurse in July who was a bit brusque but I patiently explained and I think I got across my situation and she promised to chase up. I have not heard back. I’m not keen about contacting the head & neck surgeon because humiliatingly he discussed my case extremely loudly right next to the waiting room….even his colleagues asked him to speak more quietly 3 times.

I feel like giving up but know the risks if I do…..

Wildflower Dew said:

I feel like giving up but know the risks if I do

OK. This is appalling but sadly seems to be so common that from the outset we need to fight for our lives. Keep at your CNS as well as starting a complaint through PALS. 
In England you have the right to be seen at the hospital of your choice if they have capacity so I would get your GP on board finding you a second opinion 

This is just so awful!