Dry mouth

Hi Jackie, yes, pilocarpine. It stimulates saliva and sweat glands. Has side effects though? Have you been prescribed it? 
Seems to be in common use in the USA judging by posts I’ve seen from there. 

Not something my oncology team or GP ever mentioned...have you used it?

I'm over 2 years out from chemoradiotherapy, dry mouth (xerostomia) is still an issue, most likely the new norm for most of us.

No Dani I haven't but I know someone from another support group who was prescribed it by their oncology nurse . Have been on it two months and said big improvement. Just wondered has anyone tried it on here. What are the side effects Dani xc

I have my monthly appointment tomorrow going to ask Max fax consultant to see what he thinks.This person got it from GP then on a px 

Jg123 said:

What are the side effects Dani

From what others have said, sweating, blushing and peeing often but it's dose dependent. If you can get a happy medium using as low a dose as possible perhaps it's a way to go. Do let us know how you get on and how your contact is coping. It gives us another arrow to shoot at this thing......

Hi Dani yes checked with Max fax this am. It has a lot of side effects as you said. It was originally given to patients with dry mouth then only to cancer patients with dry mouth . Side effects outweighed the benefits for me anyway. All went well at my appointment . My first year is up so now moving to two monthly appointments.

One year…… woohooo

you’ve likely  cracked it now. 

Lol. He was very pleased with my recovery and my tongue. Although I have felt the fibrosis has moved a bit to the front of my bottom teeth. It now feels like my tongue and neck feel with the fibrosis. Can this happen Dani. I was worried about onr of the jaw.  Feels bit like fibrosis 

Try Eclipse sugar free mints.  Worked like a charm for stimulating saliva for me and allowd me to stop carrying a bottle of water 24/7.  Apart from that,  if you are sure you have no cancer remaining in the area,  try near infrared light directed up under your chin 15 mins per day, and expect to see results in months,  not weeks....you need patience.  My saliva came back to completely normal using what I just described,  but it took a long time.  

I'll just add, that the eclipse sugar free mints worked so well moistening my mouth,  that I didn't get thirsty and didn't drink enough.  As a result and blood test revealed my blood had thickened due to mild dehydration LOL  So remember to drink