Alternative to Flamigel

Sorry, yes was Cisplatin.

Lynda,you will probably find that he will sleep for most of the day once he's home,my husband was very fatigued and tired for some weeks after treatment finished.Glad that the pain relief is sorted now. Paracetamol didn't do much for my husbands pain either,we tried different ones,some helped for a while and then we needed to try something else. Codeine at the end gave him constipation and made him more fatigued. Stay strong and positive. Mel x

Topsymum said:

Hi Mel, following the Oncologist visit his pain relief  was finally ramped up and he is sleeping most of the time. Initially he was prescribed paracetamol which didn’t touch the pain.

Hi Lynda. I can't believe your husband actually managed to get this far on paracetamol only. I was on Morphine from week three and on long acting morphine on top of that from week four (plus laxatives of course). When treatment ended I slept and dozed the next two weeks away, pump fed at night. Once the RT starts at least his skin will heal quickly, the burns inside much more slowly. And in that vein....slowly slowly a day at a time

Hi Dani, he was prescribed Morphine at some point but it was dispensed in tablet form which couldn’t be crushed to put in his food pipe and it took an age to sort out, so was reliant on paracetamol.  During his third admittance to hospital he was told he’d only been prescribed paracetamol anyway so spent a long night struggling with the pain,  before the Houseman intervened the next day.It is very difficult to negotiate with carers when you are unable to talk, and fuzzy headed with pain, as I’m sure you know. Anyway to quote my well worn phrase, onwards and upwards. Thanks again for your advice.

Lynda x

Hi sorry your husbands been hospitalised hopefully the can sort him out. I burned quite badly and was given a polymen bandage to wrapt round my neck they were on prescription and a special tape to  hold it. I had to leave it on for several days at a rime until the puss came through to the other side of the bandage . They are verybvery good expensive but work. Are yiu at a cancer centre ? During treatment in my lastb2 weeks I also had my neck wrapped in hospital grade cling film to protect the mask from stick8ng to my neck. Hooe yiu get sorted I was told no cream whilst using the bandage and only  use tepid water to rinse my neck. I healed very quickly once treatment di I shed and used the bandage fro around 3 weeks. 

hugs Hazel 

Thank you Hazel for your advice and support. Very much appreciated.

Lynda x

You're welcome Lynda  hope the hospital will prescribe it for him. Yiu can buy from Amazon but would be better if the hospital gave it to you. If you look at my blog around week6-7 you’ll see photos of me with it on and how my hubby cut slits in the bottom so it sat round my neck. Can’t put photo in gp here as moderators would take it down. 
Hope he’s home soon  

you’ll see also how I burned but if you look now at my photos it healed without any issues    Always use factor 50 I put it in everyday away or home in the U.K.  

Hazel x

Hi Hazel.

Just a quick question if you don't mind?

Do you put the factor 50 on all year round, even in winter?  I know it sounds a bit daft but I need to know as I've only been using it on H the past couple of weeks since it got really sunny here.  Apart from hospital appointments we don't go out but he did get radiation burns, so needs to be extra careful from now on.  He always wears a baseball cap.

Gill xx 

RadioactiveRaz said:

Can’t put photo in gp here as moderators would take it down. 

You can out a photo of yourself here as long as nobody else is in it 

Gill H said:

Do you put the factor 50 on all year round, even in winter?

For the first year yes. After that 30 and none in winter here in U.K. My oncologist told me that increased sensitivity after radiotherapy means the skin is at a higher risk of burning, skin damage, and potentially developing skin cancer. This sensitivity starts to wane after a year so it  was over kill using 50 all the time. 

I must admit I hardly bother at all now unless I am in the summer sun most of the day