Radiotherapy and Chemotherapy post oeprative

Hi Kellie

Well done on getting through the surgery 

Macmillan have a leaflet on cisplatin here 

https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/cisplatin

Most folk here experience nausea that’s for sure but you get meds to control that. Beware of you have hearing issues and let your team know if you do. 
With cisplatin you get lots of fluid which will make your mask tight that day. 
GelX is an oral spray so not really an alternative to PBM. 

Hi Dani,

Thank you surgery was 15 hours longer than expected unfortunately the tumour in the mandible was 30mm. My Tracheostomy also caused trouble when I developed a collection behind it but I'm home now that's the important thing. 

Thank you for the leaflet I will have a read of that it's very overwhelming at these appointments and so very busy it's hard to ask all the questions in time. 

I must admit I was disappointed to hear they don't offer PBM I had looked into a device on Amazon which is no where near the potency but thought it may help but my oncologist has said no just use Gelex... Hoping to make it as many weeks as I can with oral intake. 

Oh dear so Tuesdays will feel quite claustrophobic in the mask thank you for this update they didn't mention.

Kellie x

Where are you Kellie? There are private clinics that use the Thor Machines. 

I'm in Ashford Kent I'd be really keen to try and minimise side effects where possible

I’ll ask. Can you pm me your consultants name 

Just click on my avatar and you’ll see a plus sign top right. Click there and choose send private message from the drop down menu. 

I had cisplatin but only twice across the 6 weeks radiotherapy. 

I had a picc line in the end as they couldn't find my veins. 

The chemo effects everyone differently, but I did find it had a huge impact on my appetite and made me fall asleep all the time. I only had two session so there was time to recover between the two, so would imagine the tiredness will feel tougher if you're having 6 sessions. 

 X 

Janiem said:

so would imagine the tiredness will feel tougher if you're having 6 sessions. 

It’s the same total dose so weekly chemo should be less rigorous. 

Thank you for your reply

The picc line is a good idea my oncologist has recommended it to start with.

I have a peg already which was inserted pre op so I can use that for nutrition however I'm really hopeful to eat as long as I can as currently I'm on puree and get upgraded to soft a week before treatment starts - cannot wait for spaghetti carbonara lol 

Not looking forward to the tiredness then that it caused esp if you had a break will ask them tomorrow for plan 

Hope you are well x

Hello there, my husband only needed 2 rounds of the cisplatin,however he had those rounds on the same day with RT, the CT took best of 8hrs, by time we got back home,we would have spend 10hrs in hospital,time between the CT allowed him to recover, as you said, he also had no appetite,felt very fatigyeabd tired,which I believe had a big impact of him losing so much weight. I can feel for everyone having CT more often and close to each other. But then we were told that cisplatin is one of the harsher treatments compare to some others. All the best +hugs  fellow wife Mel x