Hello again,
I hope everyone is as well as can be.
I am 4 weeks post op today for a hemiglossectomy, hemimandiblectomy and right neck dissection.
I attended my appointment yesterday to be told half the pathology is back my tongue has clear margins and they took all my lymph nodes but the enlarged one did have cancer in it and there is a concern it may of broken out of its capsule but they don't know for sure yet. Mandible will still be another 2 weeks until I know margins.
My oncologist has said it's aggressive so he will treat aggressively and I'm due to start radiotherapy on 19th may 30 fractions 6 weeks with a Tuesday also being Cistiplastin chemo day (6 sessions)
Has anyone had radiotherapy and chemo once a week? I'd like to know likely side affects of chemo they've said infertility could be one of them which is hard as I'm 37 and we don't have children yet.
I have a peg already (inserted pre op) which is causing some issues with granulation at the moment but I'm using it daily for meds. Currently am on puree diet with the hope to be on soft foods in two weeks (6 weeks post jaw)
I asked about PBM but my trust don't offer it unfortunately they use Jellex instead? Anyone with experience of this would also be great.
Thank you 
Kellie x
Hi Kellie
Well done on getting through the surgery
Macmillan have a leaflet on cisplatin here
https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/cisplatin
Most folk here experience nausea that’s for sure but you get meds to control that. Beware of you have hearing issues and let your team know if you do.
With cisplatin you get lots of fluid which will make your mask tight that day.
GelX is an oral spray so not really an alternative to PBM.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Where are you Kellie? There are private clinics that use the Thor Machines.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I'm in Ashford Kent I'd be really keen to try and minimise side effects where possible 
I’ll ask. Can you pm me your consultants name
Just click on my avatar and you’ll see a plus sign top right. Click there and choose send private message from the drop down menu.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
