Hi everyone.
Long time fundraiser, first time user :(
I've recently been having investigations for Nasopharyngeal Cancer.
My initial MRI showed signs of Lymphoma, then I went to see a specialist who used a camera to look up my nose and noticed a mass which was then operated on a week later to take biopsies from. After the operation I received a letter with a telephone appointment for my results which should have been tomorrow, 8th April. On Friday I received a call from the hospital telling me that this had been cancelled and they needed to see me face to face on Thursday instead. This has got me really worried as I would have thought, if it was nothing, they would have just kept the telephone appointment.
I've been unwell for months and this is the end or the beginning which ever way you look at it but I'm scared and the wait is killing me. Cancer runs in my family, if that's such a thing. I lost my grandad, to Lymphoma, my gran to lung cancer, my aunt to lung cancer and brain tumour's and my Mum in September to Lung cancer and brain Tumours
I wondered if any of you had any thoughts on them changing the appointment, as to me, its not looking like its going to be good news.
I hope everyone is doing as well as they can be
Hi Max.
well you already know there is something as you have had a biopsy. I would imagine the first appointment was made on a routine basis. They have obviously now changed it to discuss the pathology findings.
Waiting is awful but you just have to keep busy doing something else to try to keep occupied.
Stay with us. There are lots of people here to help you through
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I bet. All this is hugely stressful and as you point out knowing is heaps better than not knowing and making stuff up in your mind.
At least the hospital is on it and if thus us cancer then things will move fast. Take somebody in with you to be an extra pair of ears. Take notes and make sure you have your specialist nurse contact details.
Put aside the familial notion. Nasopharyngeal cancer is caused by Epstein Barr virus. The same virus that causes glandular fever. It’s just bad luck.
Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
